Routine collection of patient-reported outcomes in HIV clinics: lessons learned after more than 130,000 assessments have been completed

We implemented a PRO assessment into HIV care at nine geographically dispersed clinics. PRO responses in domains known to drive adverse outcomes such as substance use were identified as were situational concerns such as unstable housing. This study demonstrated that use of a well-designed PRO platform can address many of the barriers of paper and interview-based collection and be sustainable over time even as clinic flow and content priorities evolve. It demonstrated that PROs done for clinical care are useful to address clinically relevant research questions and institutional needs. Finally, this study demonstrated the feasibility of wide-spread implementation of a clinical PRO assessment into busy HIV clinical care settings with >130,000 assessments completed to date.

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Publication Details

Journal
AIDS
Published
2026-02-23
DOI
https://doi.org/10.1097/qad.0000000000004470
Primary Topic
HIV/AIDS Research and Interventions
Type
article
Field-Weighted Citation Impact
0.00
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article

Routine collection of patient-reported outcomes in HIV clinics: lessons learned after more than 130,000 assessments have been completed

Anamaria Rodriguez, Edward R. Cachay, R J Fredericksen, Valeria Botero et al.
AIDS
HIV/AIDS Research and Interventions
article

Routine collection of patient-reported outcomes in HIV clinics: lessons learned after more than 130,000 assessments have been completed

Anamaria Rodriguez, Edward R. Cachay, R J Fredericksen, Valeria Botero, M. S. Saag, Wajiha Z. Akhtar, Jeanne C. Keruly, S. S. Heath, JaC Delaney, Amanda Lwillig, K. H. Mayer, WB Lober, Allison R. Webel, Brooke Willis, Greer Burkholder, Sonia Napravnik, Justin R. McReynolds, Julie G. Fleming, Sydney leBlanc, Steven A. Safren, Geetanjali Chander, Mindy Dai, Richard D. Moore, Kimberly Han, D. Scott Batey, Katerina Christopoulos, Mari M. Kitahata, George Yendewa, Heidi M. Crane, Laura Bamford, L. Sarah Mixson
article en

Abstract

We implemented a PRO assessment into HIV care at nine geographically dispersed clinics. PRO responses in domains known to drive adverse outcomes such as substance use were identified as were situational concerns such as unstable housing. This study demonstrated that use of a well-designed PRO platform can address many of the barriers of paper and interview-based collection and be sustainable over time even as clinic flow and content priorities evolve. It demonstrated that PROs done for clinical care are useful to address clinically relevant research questions and institutional needs. Finally, this study demonstrated the feasibility of wide-spread implementation of a clinical PRO assessment into busy HIV clinical care settings with >130,000 assessments completed to date.

AIDS
University of North Carolina at Chapel Hill (US), Tulane University (US), Johns Hopkins University (US), University of Miami (US), University of California, San Francisco (US), University of Washington (US), UC San Diego Health System (US), University of Alabama at Birmingham (US), University of California San Diego (US), Neurobehavioral Systems (US), Fenway Health (US), Case Western Reserve University (US)
Good health and well-being
Openalex Percentile: Top 46%
HIV/AIDS Research and Interventions
DOISourceOpenAlex
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