The Cerebral Palsy Link Worker (CP LINK) study: Protocol for a feasibility study with integrated process evaluation
We will undertake an evaluation of the link worker role by gathering data at baseline, 1-week and 3-months from participants who use the service. Feasibility outcomes will include recruitment and retention rates, acceptability of the intervention, completeness and quality of outcome data, and the practicality of collecting and analysing participant-reported outcome measures. Process evaluation outcomes will include insights into how the intervention was delivered and received, fidelity to the intervention model, contextual factors that influenced implementation, potential sustainability, and stakeholder experiences. This project has been co-developed with the charity UP - The Adult Cerebral Palsy Movement, and we will work alongside a lived experience advisory group and stakeholder advisory group throughout the project.
Authors
- Kimberley J. Smith (ORCID: https://orcid.org/0000-0002-1323-627X)
- Valerie L. Stevenson (ORCID: https://orcid.org/0000-0002-4782-7975)
- Emma Livingstone
- Karen Lowton (ORCID: https://orcid.org/0000-0001-8453-0196)
- Erica Ranzato (ORCID: https://orcid.org/0000-0003-4815-7667)
- Miriam Creeger
- Meriel Norris
- Thelonious McCarthy Budzynski
- Christina Victor
- Cherry Kilbride
Institutions
- United Cerebral Palsy (US)
- University of Sussex (GB)
- University of Surrey (GB)
- National Hospital for Neurology and Neurosurgery (GB)
- University College London (GB)
- Brunel University of London (GB)
Publication Details
- Journal
- PLoS ONE
- Published
- 2026-02-23
- DOI
- https://doi.org/10.1371/journal.pone.0343206
- Primary Topic
- Cerebral Palsy and Movement Disorders
- Type
- article
- Field-Weighted Citation Impact
- 0.00