The Cerebral Palsy Link Worker (CP LINK) study: Protocol for a feasibility study with integrated process evaluation

We will undertake an evaluation of the link worker role by gathering data at baseline, 1-week and 3-months from participants who use the service. Feasibility outcomes will include recruitment and retention rates, acceptability of the intervention, completeness and quality of outcome data, and the practicality of collecting and analysing participant-reported outcome measures. Process evaluation outcomes will include insights into how the intervention was delivered and received, fidelity to the intervention model, contextual factors that influenced implementation, potential sustainability, and stakeholder experiences. This project has been co-developed with the charity UP - The Adult Cerebral Palsy Movement, and we will work alongside a lived experience advisory group and stakeholder advisory group throughout the project.

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Publication Details

Journal
PLoS ONE
Published
2026-02-23
DOI
https://doi.org/10.1371/journal.pone.0343206
Primary Topic
Cerebral Palsy and Movement Disorders
Type
article
Field-Weighted Citation Impact
0.00
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article

The Cerebral Palsy Link Worker (CP LINK) study: Protocol for a feasibility study with integrated process evaluation

Kimberley J. Smith, Valerie L. Stevenson, Emma Livingstone, Karen Lowton et al.
PLoS ONE
Cerebral Palsy and Movement Disorders
article

The Cerebral Palsy Link Worker (CP LINK) study: Protocol for a feasibility study with integrated process evaluation

Kimberley J. Smith, Valerie L. Stevenson, Emma Livingstone, Karen Lowton, Erica Ranzato, Miriam Creeger, Meriel Norris, Thelonious McCarthy Budzynski, Christina Victor, Cherry Kilbride
article en

Abstract

We will undertake an evaluation of the link worker role by gathering data at baseline, 1-week and 3-months from participants who use the service. Feasibility outcomes will include recruitment and retention rates, acceptability of the intervention, completeness and quality of outcome data, and the practicality of collecting and analysing participant-reported outcome measures. Process evaluation outcomes will include insights into how the intervention was delivered and received, fidelity to the intervention model, contextual factors that influenced implementation, potential sustainability, and stakeholder experiences. This project has been co-developed with the charity UP - The Adult Cerebral Palsy Movement, and we will work alongside a lived experience advisory group and stakeholder advisory group throughout the project.

PLoS ONEVol. 21(2)
United Cerebral Palsy (US), University of Sussex (GB), University of Surrey (GB), National Hospital for Neurology and Neurosurgery (GB), University College London (GB), Brunel University of London (GB)
No poverty
Openalex Percentile: Top 51%
Cerebral Palsy and Movement Disorders
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