Barriers and enablers to community living: A mixed-methods systems study of young adults with life-limiting conditions

Systems thinking clarified how interactions among informal care, formal supports, and symptom severity shape care continuity. Findings highlight the need to position respite, practical carer support and navigation assistance as core components of community-based palliative care, and to align disability, aged-care and palliative-care systems so younger adults are not excluded from essential support due to age or funding rules.

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Publication Details

Journal
Palliative Medicine
Published
2026-02-22
DOI
https://doi.org/10.1177/02692163261418445
Primary Topic
Healthcare innovation and challenges
Type
article
Field-Weighted Citation Impact
0.00
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article

Barriers and enablers to community living: A mixed-methods systems study of young adults with life-limiting conditions

Ali Lakhani, Deniz Senyel, Ruth Mackenzie-Stewart, Rwth Stuckey
Palliative Medicine
Healthcare innovation and challenges
article

Barriers and enablers to community living: A mixed-methods systems study of young adults with life-limiting conditions

Ali Lakhani, Deniz Senyel, Ruth Mackenzie-Stewart, Rwth Stuckey
article en

Abstract

Systems thinking clarified how interactions among informal care, formal supports, and symptom severity shape care continuity. Findings highlight the need to position respite, practical carer support and navigation assistance as core components of community-based palliative care, and to align disability, aged-care and palliative-care systems so younger adults are not excluded from essential support due to age or funding rules.

Palliative Medicine
Griffith University (AU), La Trobe University (AU)
Openalex Percentile: Top 48%
Healthcare innovation and challenges
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