Co-designing a framework to communicate patient-centred outcomes in palliative care: involving patients and the public to reframe understanding

This study found that communication of patient-centred outcomes and Patient-Reported outcome (PRO) evidence can be strengthened through meaningful patient and public involvement and engagement (PPIE). This approach helps to reframe public understanding of palliative care, highlighting its broader relevance beyond end-of-life settings. The findings show how PPIE can amplify the impact of patient-centred research by engaging wider audiences, promoting timely access to care, and supporting better use of data. While developed in the context of palliative care, the framework offers transferable strategies for communicating complex outcomes in other often misunderstood or stigmatised areas, such as mental health and dementia care.