Supporting a ‘good life’ for autistic children: Autistic adults’ and parents’ perspectives

There has been limited research into what helps to promote autistic children's quality of life. This qualitative study, co-produced with autistic people, aimed to identify, from multiple perspectives, what helps autistic children to live a 'good life'. We conducted semi-structured interviews with autistic adults (<i>n</i> = 28) and parents of autistic children (<i>n</i> = 29). Using reflexive thematic analysis, we identified four themes: <i>Being accepted by others in a way that allows the child to be themselves; Finding 'the things that light [the child]'; Having a sense of control over their own life</i> and <i>Physical/sensory environments matter.</i> All themes were common to both autistic adults and parents of autistic children, with the exception of one sub-theme, which was predominantly driven by autistic adults' responses. These findings highlight potential pathways to support autistic children's quality of life now and into the future.Lay AbstractThere hasn't been much research about what helps autistic children to live a 'good life' or to have a good quality of life. This makes it difficult to know how to help autistic children to do so. In this study, we asked autistic adults and parents of autistic children what they thought helped autistic children to live a 'good life'. They mentioned four important areas. These were (a) autistic children being accepted as their real or true self, (b) autistic children finding the things that they enjoy and that energise them, (c) autistic children having a sense of control in their life and (d) physical environments that suit autistic children's sensory needs. These are things that can be changed in the autistic child's environment to support the autistic child in living a good life.

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Publication Details

Journal
Autism
Published
2026-02-18
DOI
https://doi.org/10.1177/13623613261418945
Primary Topic
Autism Spectrum Disorder Research
Type
article
Field-Weighted Citation Impact
0.00
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article

Supporting a ‘good life’ for autistic children: Autistic adults’ and parents’ perspectives

Kate Simpson, Melanie Heyworth, Connie Allen, Rachael Bowen et al.
Autism
Autism Spectrum Disorder Research
article

Supporting a ‘good life’ for autistic children: Autistic adults’ and parents’ perspectives

Kate Simpson, Melanie Heyworth, Connie Allen, Rachael Bowen, Elizabeth Wheeley, Jacquiline den Houting, Elizabeth Pellicano, Dawn Adams
article en

Abstract

There has been limited research into what helps to promote autistic children's quality of life. This qualitative study, co-produced with autistic people, aimed to identify, from multiple perspectives, what helps autistic children to live a 'good life'. We conducted semi-structured interviews with autistic adults (<i>n</i> = 28) and parents of autistic children (<i>n</i> = 29). Using reflexive thematic analysis, we identified four themes: <i>Being accepted by others in a way that allows the child to be themselves; Finding 'the things that light [the child]'; Having a sense of control over their own life</i> and <i>Physical/sensory environments matter.</i> All themes were common to both autistic adults and parents of autistic children, with the exception of one sub-theme, which was predominantly driven by autistic adults' responses. These findings highlight potential pathways to support autistic children's quality of life now and into the future.Lay AbstractThere hasn't been much research about what helps autistic children to live a 'good life' or to have a good quality of life. This makes it difficult to know how to help autistic children to do so. In this study, we asked autistic adults and parents of autistic children what they thought helped autistic children to live a 'good life'. They mentioned four important areas. These were (a) autistic children being accepted as their real or true self, (b) autistic children finding the things that they enjoy and that energise them, (c) autistic children having a sense of control in their life and (d) physical environments that suit autistic children's sensory needs. These are things that can be changed in the autistic child's environment to support the autistic child in living a good life.

AutismVol. 30(4)
Griffith University (AU), La Trobe University (AU), Autism CRC (AU), University College London (GB), Macquarie University (AU)
Openalex Percentile: Top 52%
Autism Spectrum Disorder Research
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