The Validity and Reliability of the Turkish Version of the Parental Needs Scale for Rare Diseases (PNS‐RD)
This study on the validity and reliability of the Turkish version of PNS-RD aims to address the gap in understanding the needs of parents with children with rare diseases. Introducing this scale into Turkish literature will establish a foundation for future research. This scale, which identifies parents' needs, will assist in developing intervention programs to meet those needs moving forward.
Authors
- Meryem Karaca (ORCID: https://orcid.org/0000-0002-0662-7344)
- Sema Bayraktar (ORCID: https://orcid.org/0000-0002-4509-6275)
- Aslı Akdeniz Kudubeş
- Gülden Fatma Gökçay
- Ayfer Aydın
- Mehmet Cihan Balcı
Institutions
- Bilecik Şeyh Edebali Üniversitesi (TR)
- University of Health Science (KH)
- Istanbul University (TR)
Publication Details
- Journal
- Journal for Specialists in Pediatric Nursing
- Published
- 2026-02-18
- DOI
- https://doi.org/10.1111/jspn.70013
- Primary Topic
- Genomics and Rare Diseases
- Type
- article
- Field-Weighted Citation Impact
- 0.00