The Validity and Reliability of the Turkish Version of the Parental Needs Scale for Rare Diseases (PNS‐RD)

This study on the validity and reliability of the Turkish version of PNS-RD aims to address the gap in understanding the needs of parents with children with rare diseases. Introducing this scale into Turkish literature will establish a foundation for future research. This scale, which identifies parents' needs, will assist in developing intervention programs to meet those needs moving forward.

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Publication Details

Journal
Journal for Specialists in Pediatric Nursing
Published
2026-02-18
DOI
https://doi.org/10.1111/jspn.70013
Primary Topic
Genomics and Rare Diseases
Type
article
Field-Weighted Citation Impact
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article

The Validity and Reliability of the Turkish Version of the Parental Needs Scale for Rare Diseases (PNS‐RD)

Meryem Karaca, Sema Bayraktar, Aslı Akdeniz Kudubeş, Gülden Fatma Gökçay et al.
Journal for Specialists in Pediatric Nursing
Genomics and Rare Diseases
article

The Validity and Reliability of the Turkish Version of the Parental Needs Scale for Rare Diseases (PNS‐RD)

Meryem Karaca, Sema Bayraktar, Aslı Akdeniz Kudubeş, Gülden Fatma Gökçay, Ayfer Aydın, Mehmet Cihan Balcı
article en

Abstract

This study on the validity and reliability of the Turkish version of PNS-RD aims to address the gap in understanding the needs of parents with children with rare diseases. Introducing this scale into Turkish literature will establish a foundation for future research. This scale, which identifies parents' needs, will assist in developing intervention programs to meet those needs moving forward.

Journal for Specialists in Pediatric NursingVol. 31(2)
Bilecik Şeyh Edebali Üniversitesi (TR), University of Health Science (KH), Istanbul University (TR)
Openalex Percentile: Top 49%
Genomics and Rare Diseases
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