The Development and Co‐Production of a Caregiver Coping Resource for Pediatric Inflammatory Bowel Disease and Autoimmune Liver Disease

While caregivers of children with IBD and/or AILD have known coping needs, caregiver-focused coping resources are urgently needed. A multidisciplinary team of caregivers and psychosocial clinicians within LHNs co-produced such a resource that is freely accessible. This QI work demonstrates the collaborative potential to build caregiver-focused resources for all families to benefit. Future work is needed to understand the clinical use of this resource as well as the impact of this resource for caregivers of children with IBD and/or AILD.

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Publication Details

Journal
Learning Health Systems
Published
2026-02-17
DOI
https://doi.org/10.1002/lrh2.70061
Primary Topic
Adolescent and Pediatric Healthcare
Type
article
Field-Weighted Citation Impact
0.00
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article

The Development and Co‐Production of a Caregiver Coping Resource for Pediatric Inflammatory Bowel Disease and Autoimmune Liver Disease

Hannah McKillop, Christina E. Holbein, MARIA LESTER, Jane R. Weyer et al.
Learning Health Systems
Adolescent and Pediatric Healthcare
article

The Development and Co‐Production of a Caregiver Coping Resource for Pediatric Inflammatory Bowel Disease and Autoimmune Liver Disease

Hannah McKillop, Christina E. Holbein, MARIA LESTER, Jane R. Weyer, Jennie G. David‐Rodgers, Victoria Levine, Autoimmune Liver Disease Network for Kids Learning Health System, Ildiko Mehes, Heidi C. Riechel, ImproveCareNow Learning Health System
article en

Abstract

While caregivers of children with IBD and/or AILD have known coping needs, caregiver-focused coping resources are urgently needed. A multidisciplinary team of caregivers and psychosocial clinicians within LHNs co-produced such a resource that is freely accessible. This QI work demonstrates the collaborative potential to build caregiver-focused resources for all families to benefit. Future work is needed to understand the clinical use of this resource as well as the impact of this resource for caregivers of children with IBD and/or AILD.

Learning Health SystemsVol. 10(2)
Cincinnati Children's Hospital Medical Center (US), Nationwide Children's Hospital (US), Children's Hospital of Philadelphia (US), GI Care for Kids (US), Nemours Children's Health System (US), Children's Healthcare of Atlanta (US), Nemours Children's Clinic (US)
Openalex Percentile: Top 51%
Adolescent and Pediatric Healthcare
DOIOpen Access PDFOpenAlex
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The Development and Co‐Production of a Caregiver Coping Resource for Pediatric Inflammatory Bowel Disease and Autoimmune Liver Disease — Hannah McKillop, Christina E. Holbein, et al. · Learning Health Systems (2026) | TGRS Research Map | TGRS