Measures of identity in adolescents/young adults with long-term physical health conditions: a systematic review
The IIQ and DIDS may be appropriate when their conceptual focus aligns with research objectives. Remaining measures should be used cautiously; many lack developmental or condition-specific relevance. Future identity measure development should integrate lived experience, expert input, and rigorous psychometric testing to ensure tools are both meaningful and fit for purpose in target populations.
Authors
- B. Carter
- Christopher Eccleston (ORCID: https://orcid.org/0000-0003-0698-1543)
- Clare Pain (ORCID: https://orcid.org/0000-0003-4965-3259)
- Tessa Rugg
- Dr Jeremy Gauntlett-Gilbert
- Abbie Jordan
- Line Caes
Institutions
- University of Stirling (GB)
- University of Liverpool (GB)
- Edge Hill University (GB)
- University of the West of England (GB)
- Royal United Hospital (GB)
- Alder Hey Children's NHS Foundation Trust (GB)
- University of Bath (GB)
Publication Details
- Journal
- Journal of Pediatric Psychology
- Published
- 2026-01-05
- DOI
- https://doi.org/10.1093/jpepsy/jsag001
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 0.00