Has anything changed for Fibromyalgia? Focus groups with patients on their lived experiences in England
While participants recognised some positive changes in others' understanding of FM, the overwhelming sentiment was that FM remains overall poorly received and supported by peers and healthcare professionals. Participants in the BRC described their experience of FM as part of a journey toward a higher purpose, linking their illness to personal growth.
Authors
- Anna Kharko (ORCID: https://orcid.org/0000-0003-0908-6173)
- Cosima Locher (ORCID: https://orcid.org/0000-0002-9660-0590)
- Léo Druart (ORCID: https://orcid.org/0000-0002-5060-6620)
- Helen Koechlin (ORCID: https://orcid.org/0000-0001-6680-8027)
- Kirralise Hansford (ORCID: https://orcid.org/0000-0002-5738-6843)
- Joseph Lanario (ORCID: https://orcid.org/0000-0003-0317-9774)
- Anthony Davies (ORCID: https://orcid.org/0000-0002-0818-441X)
Institutions
- Uppsala University (SE)
- University of Basel (CH)
- University of Zurich (CH)
- Brown University (US)
- University Children's Hospital Zurich (CH)
- Science Oxford (GB)
- University Hospitals Plymouth NHS Trust (GB)
- University of Plymouth (GB)
Publication Details
- Journal
- PLoS ONE
- Published
- 2026-02-13
- DOI
- https://doi.org/10.1371/journal.pone.0342065
- Primary Topic
- Fibromyalgia and Chronic Fatigue Syndrome Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- National Science Foundation
- Schweizerischer Nationalfonds zur Förderung der Wissenschaftlichen Forschung