Poster Session I - A144 PATIENT AND HEALTHCARE PROVIDER VOICES – LISTENING TO IMPROVE: EVALUATING A MULTIDISCIPLINARY COORDINATION OF CARE PATHWAY FOR PANCREATICOBILIARY CANCER

Abstract Background The Edmonton Pancreaticobiliary Inflammation and Cancer (EPIC) Program is a nurse navigator (NN) led multidisciplinary coordination of care pathway aimed at improving care coordination, access to supportive services, and clinical outcomes for patients with pancreaticobiliary cancer. Aims Examine the perspective and experience of patients, their families, and healthcare providers (HCPs) in the EPIC program. Methods A mixed-methods design was used. Patient feedback was collected through a paper survey (N = 90), structured interview (N = 119), and NN notes documenting patient comments (N = 15). All patients and family members were eligible to participate. An online survey was distributed to a purposive sample of HCPs (N = 24) involved with the EPIC program. Quantitative survey data were analyzed descriptively, while qualitative data from interviews, nursing notes, and open-ended survey responses underwent thematic analysis. Results Patient feedback from surveys (n = 41, 46%), interviews (n = 63, 53%), and nursing notes (n = 15) generated nine themes. Overall, 85% of patients reported high satisfaction, citing emotionally supportive care, timely communication, effective coordination and navigation, improved access to investigations and symptom relief, and clear information provision. Among HCPs (n = 12, 50%), 83% felt the program met patient needs, 100% agreed multidisciplinary coordination improved, and 92% felt comfortable accessing the program. Positive program experiences included dedicated contact personnel, timely communication, and access to NN and dietitian. Patients valued emotional, medical, and resource-based support, while HCPs emphasized timely coordinated care, streamlined communication, and rapid access to referrals and investigations. Patient-suggested improvements included more written education materials, increased in-person contact, and extended program hours. HCPs recommended raising program awareness, simplifying referrals, funding to expand NN staffing, and broadening the scope to include additional hepatobiliary cancers. Conclusions The EPIC Program is highly valued by patients and HCPs. The findings strongly support continued investment in NNs, communication infrastructure, and program expansion to strengthen pancreaticobiliary cancer care. Funding Agencies None

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Publication Details

Journal
Journal of the Canadian Association of Gastroenterology
Published
2026-02-01
DOI
https://doi.org/10.1093/jcag/gwaf042.144
Primary Topic
Pancreatic and Hepatic Oncology Research
Type
article
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article

Poster Session I - A144 PATIENT AND HEALTHCARE PROVIDER VOICES – LISTENING TO IMPROVE: EVALUATING A MULTIDISCIPLINARY COORDINATION OF CARE PATHWAY FOR PANCREATICOBILIARY CANCER

Pamela V. Mathura, Shawn Wasilenko, Christopher Fung, Gill Louise Buchanan et al.
Journal of the Canadian Association of Gastroenterology
Pancreatic and Hepatic Oncology Research
article

Poster Session I - A144 PATIENT AND HEALTHCARE PROVIDER VOICES – LISTENING TO IMPROVE: EVALUATING A MULTIDISCIPLINARY COORDINATION OF CARE PATHWAY FOR PANCREATICOBILIARY CANCER

Pamela V. Mathura, Shawn Wasilenko, Christopher Fung, Gill Louise Buchanan, S Perryman, Jan-Erick Nilsson, Maite Timmermans, Khaled Dajani, Gurpal Sandha, B Anderson, J Shapiro, E van der Raadt, D Bigam, S Veldhuyzen Van Zanten, A Kwan, A Nordin-Garrett, K Blackie
article en

Abstract

Abstract Background The Edmonton Pancreaticobiliary Inflammation and Cancer (EPIC) Program is a nurse navigator (NN) led multidisciplinary coordination of care pathway aimed at improving care coordination, access to supportive services, and clinical outcomes for patients with pancreaticobiliary cancer. Aims Examine the perspective and experience of patients, their families, and healthcare providers (HCPs) in the EPIC program. Methods A mixed-methods design was used. Patient feedback was collected through a paper survey (N = 90), structured interview (N = 119), and NN notes documenting patient comments (N = 15). All patients and family members were eligible to participate. An online survey was distributed to a purposive sample of HCPs (N = 24) involved with the EPIC program. Quantitative survey data were analyzed descriptively, while qualitative data from interviews, nursing notes, and open-ended survey responses underwent thematic analysis. Results Patient feedback from surveys (n = 41, 46%), interviews (n = 63, 53%), and nursing notes (n = 15) generated nine themes. Overall, 85% of patients reported high satisfaction, citing emotionally supportive care, timely communication, effective coordination and navigation, improved access to investigations and symptom relief, and clear information provision. Among HCPs (n = 12, 50%), 83% felt the program met patient needs, 100% agreed multidisciplinary coordination improved, and 92% felt comfortable accessing the program. Positive program experiences included dedicated contact personnel, timely communication, and access to NN and dietitian. Patients valued emotional, medical, and resource-based support, while HCPs emphasized timely coordinated care, streamlined communication, and rapid access to referrals and investigations. Patient-suggested improvements included more written education materials, increased in-person contact, and extended program hours. HCPs recommended raising program awareness, simplifying referrals, funding to expand NN staffing, and broadening the scope to include additional hepatobiliary cancers. Conclusions The EPIC Program is highly valued by patients and HCPs. The findings strongly support continued investment in NNs, communication infrastructure, and program expansion to strengthen pancreaticobiliary cancer care. Funding Agencies None

Journal of the Canadian Association of GastroenterologyVol. 9(Supplement_1)
Alberta Health Services (CA), University of Alberta (CA)
Quality Education
Openalex Percentile: Top 57%
Pancreatic and Hepatic Oncology Research
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