Food for thought: Caregivers’ perspectives on food diaries in the assessment of avoidant/restrictive food intake disorder (ARFID)

Parents and/or caregivers of young people undergoing assessment for avoidant/restrictive food intake disorder (ARFID) are typically asked to complete a food diary, yet little research explores their perspectives of completing food diaries as part of an assessment process. This study aimed to (1) determine the proportion of caregivers completing a food diary as part of an ARFID assessment and (2) evaluate their experiences. A mixed-methods clinical service evaluation was conducted. Quantitative data collected from 2023–2024 identified food diary completion rates. Qualitative interviews with nine parents of young people aged 8.18–14.21 years provided insights into experiences of completing food diaries. Interviews were analysed using thematic analysis. Of 201 participants, 84% of caregivers completed a food diary as part of the assessment process: 49% submitted before assessment, 19% on the day, and 16% afterwards. Thematic analysis identified four key themes: practical challenges, informing care, accessing support, and emotional process. Fewer than half of parents completed the diary before assessment, highlighting areas for improvement in supporting completion rates. Insights from parents identified what they found helpful and challenging, both from a practical and emotional perspective. Findings inform adaptations to enhance ARFID assessment and care across services.