Expert Consensus Approach to Developing Inpatient Common Data Elements for Neonatal Encephalopathy Research
The CDEs are the first of several important steps to further standardize research and reporting of NE/HIE investigations to perform more efficient and powerful clinical research in the field moving forward. Future studies need to establish a clinical and research definition of HIE and develop CDEs for collecting long-term, family-centered follow-up data postdischarge.
Authors
- Alexa Craig (ORCID: https://orcid.org/0000-0002-6477-3390)
- Eilon Shany (ORCID: https://orcid.org/0000-0003-4142-3707)
- Eleanor J. Molloy (ORCID: https://orcid.org/0000-0001-6798-2158)
- G deVeber
- Floris Groenendaal (ORCID: https://orcid.org/0000-0002-9284-1637)
- Vann Chau
- Jehier Afifi
- Betsy Pilon
- Osuke Iwata
- Emel Okulu
- Pia Wintermark
- Eric S. Peeples
- Janet Soul
- Hemmen Sabir
- Agnes Jermendy
- Nem Yun Boo
- Ulrike Mietzsch
- Maria L.V. Dizon
- Khorshid Mohammad
- Sonia Lomeli Bonifacio
- Danielle Guez-Barber
- Mohamed El-Dib
Institutions
- Semmelweis University (HU)
- Northwestern University (US)
- Tufts University (US)
- Ben-Gurion University of the Negev (IL)
- Brigham and Women's Hospital (US)
- Boston Children's Hospital (US)
- Dalhousie University (CA)
- Nebraska Medical Center (US)
- Lucile Packard Children's Hospital (US)
- Harvard University (US)
- Ankara University (TR)
- University of Calgary (CA)
- University of Toronto (CA)
- Utrecht University (NL)
- University of Washington (US)
- Trinity College Dublin (IE)
- University Hospital Bonn (DE)
- Montreal Children's Hospital (CA)
- Soroka Medical Center (IL)
- Hospital for Sick Children (CA)
- Temple Street Children's University Hospital (IE)
- Nagoya City University (JP)
- Coombe Women & Infants University Hospital (IE)
- Children's Hospital Colorado (US)
- MaineHealth (US)
- Seattle Children's Hospital (US)
- Maine Medical Center (US)
- Lurie Children's Hospital (US)
- Cranbrook Academy of Art (US)
- Children's Hospital & Medical Center (US)
- Boston Children's Museum (US)
- Wilhelmina Children's Hospital (NL)
- McGill University (CA)
- University of Colorado Anschutz Medical Campus (US)
- University of Nebraska Medical Center (US)
- University of Colorado Denver (US)
- Universiti Tunku Abdul Rahman (MY)
- Stanford University (US)
Publication Details
- Journal
- Neurology
- Published
- 2026-02-09
- DOI
- https://doi.org/10.1212/wnl.0000000000214658
- Primary Topic
- Neonatal and fetal brain pathology
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Massachusetts General Hospital
- University of Nebraska Medical Center
- Northwestern University
- Cleveland Clinic
- BC Children's Hospital
- University College London
- Trinity College Dublin
- University of Toronto
- Hospital for Sick Children
- Sickkids Research Institute
- University of California, San Francisco
- Feinberg School of Medicine
- Cumming School of Medicine, University of Calgary
- School of Medicine, University of California, San Francisco