Developing, Implementing, and Evaluating a Care Management Model for Patients With Neuromuscular Diseases: Protocol for a Participatory Mixed Methods Study

Authors

Hannele Hediger (ORCID: https://orcid.org/0000-0002-1913-5605)
Heidi Petry (ORCID: https://orcid.org/0000-0001-5220-4273)
Christina Schuler (ORCID: https://orcid.org/0000-0001-7839-5987)
Martin Knoblauch
Gabriela Stettler-Nemecek (ORCID: https://orcid.org/0000-0002-9624-0847)
Markus Weber
Georg Martin Stettner
Iris Kramer
Veronika Waldboth
Barbara Grädel Messerli
Raffaella Willmann

Institutions

ZHAW Zurich University of Applied Sciences (CH)
University of St.Gallen (CH)
Winterthur Gas & Diesel (Switzerland) (CH)
University Hospital of Zurich (CH)
University Children’s Hospital Bern (CH)
University Children's Hospital Zurich (CH)
SCQM Foundation (CH)

Publication Details

Journal: JMIR Research Protocols
Published: 2026-02-05
DOI: https://doi.org/10.2196/82833
Primary Topic: Amyotrophic Lateral Sclerosis Research
Type: article
Field-Weighted Citation Impact: 0.00

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article

Developing, Implementing, and Evaluating a Care Management Model for Patients With Neuromuscular Diseases: Protocol for a Participatory Mixed Methods Study

Hannele Hediger, Heidi Petry, Christina Schuler, Martin Knoblauch et al.

Feb 5, 2026

JMIR Research Protocols

Amyotrophic Lateral Sclerosis Research

article

Developing, Implementing, and Evaluating a Care Management Model for Patients With Neuromuscular Diseases: Protocol for a Participatory Mixed Methods Study

Hannele Hediger, Heidi Petry, Christina Schuler, Martin Knoblauch, Gabriela Stettler-Nemecek, Markus Weber, Georg Martin Stettner, Iris Kramer, Veronika Waldboth, Barbara Grädel Messerli, Raffaella Willmann

February 5, 2026article en

Abstract

No abstract available for this paper.

JMIR Research ProtocolsVol. 15

ZHAW Zurich University of Applied Sciences (CH), University of St.Gallen (CH), Winterthur Gas & Diesel (Switzerland) (CH), University Hospital of Zurich (CH), University Children’s Hospital Bern (CH), University Children's Hospital Zurich (CH), SCQM Foundation (CH)

Partnerships for the goals

Openalex Percentile: Top 67%

Amyotrophic Lateral Sclerosis Research

DOI Open Access PDF OpenAlex

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