Identifying the knowledge needs and preferences of parents of children with rare diseases regarding clinical trials: a scoping review protocol
Authors
- Annie P. Mabbott (ORCID: https://orcid.org/0000-0003-2951-1261)
- Lisa Knisley
- Shannon D. Scott
Institutions
- University of Alberta (CA)
- Stollery Children's Hospital (CA)
- University of Manitoba (CA)
Publication Details
- Journal
- Systematic Reviews
- Published
- 2026-02-05
- DOI
- https://doi.org/10.1186/s13643-026-03094-0
- Primary Topic
- Genomics and Rare Diseases
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- University of Alberta
- Canadian Institutes of Health Research