Caregiver-reported social impacts in down syndrome regression disorder
This study's findings reveal a significant and complex process of perceived social disengagement among caregivers describing social withdrawal and loss of social connections that they experienced as enduring. The results emphasize the need for early interventions that address the individual's needs but also address the caregiver's social and mental health to prevent perceived long-term social isolation.
Authors
- Eileen A. Quinn
- Jonathan Douglas Santoro (ORCID: https://orcid.org/0000-0002-8350-8234)
- Kungta Chow
- Ruth C. Brown (ORCID: https://orcid.org/0000-0001-8614-1645)
- Lilia Kazerooni (ORCID: https://orcid.org/0009-0003-4147-5395)
- Maeve C. Lucas (ORCID: https://orcid.org/0009-0007-4802-3788)
- Samuel T. Otey (ORCID: https://orcid.org/0009-0000-2689-9841)
- Mariam M. Yousuf
Institutions
- University of Southern California (US)
- Children's Hospital of Los Angeles (US)
- Virginia Commonwealth University (US)
- Virginia Commonwealth University Medical Center (US)
- University of Toledo (US)
Publication Details
- Journal
- PLoS ONE
- Published
- 2026-02-04
- DOI
- https://doi.org/10.1371/journal.pone.0342148
- Primary Topic
- Down syndrome and intellectual disability research
- Type
- article
- Field-Weighted Citation Impact
- 0.00