Who CaREs - We do: Development of a community and researcher engagement program in translational medicine

There are increasing calls from research funders for the inclusion of community members at all stages of the research cycle. However, meaningful community engagement in translational research may be challenging to achieve, establish, and maintain. The Community and Researcher Engagement (CaRE) program for translational research was developed at an Australian University in response to this need. In this manuscript, we provide an overview of the CaRE program including its governance, structure and underlying principles. In addition, we detail the community and researcher partnerships (pairing service) which have been the core activity of the program since its launch in 2021. We further report on the characteristics of people who have engaged with the program, as well as their experience and satisfaction over a three-year period. The development of the CaRE program provides an important contribution to the evolving landscape of community engagement in translational research.

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Publication Details

Journal
Research Involvement and Engagement
Published
2026-02-04
DOI
https://doi.org/10.1186/s40900-026-00843-2
Primary Topic
Health Policy Implementation Science
Type
article
Field-Weighted Citation Impact
0.00

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article

Who CaREs - We do: Development of a community and researcher engagement program in translational medicine

Karen Alt, Gabriella Tikellis, Catherine Carmichael, Narelle S. Cox et al.
Research Involvement and Engagement
Health Policy Implementation Science
article

Who CaREs - We do: Development of a community and researcher engagement program in translational medicine

Karen Alt, Gabriella Tikellis, Catherine Carmichael, Narelle S. Cox, Jurie Tashkandi, Tiffany Rushen, Anna Steiner, A. WARREN JONES, Evangelia Bishop, Pia Campagna, Ken Young
article en

Abstract

There are increasing calls from research funders for the inclusion of community members at all stages of the research cycle. However, meaningful community engagement in translational research may be challenging to achieve, establish, and maintain. The Community and Researcher Engagement (CaRE) program for translational research was developed at an Australian University in response to this need. In this manuscript, we provide an overview of the CaRE program including its governance, structure and underlying principles. In addition, we detail the community and researcher partnerships (pairing service) which have been the core activity of the program since its launch in 2021. We further report on the characteristics of people who have engaged with the program, as well as their experience and satisfaction over a three-year period. The development of the CaRE program provides an important contribution to the evolving landscape of community engagement in translational research.

Research Involvement and EngagementVol. 12(1)
Monash Medical Centre (AU), Hudson Institute of Medical Research (AU), Monash Alfred Psychiatry Research centre (AU), Monash Health (AU), Monash University (AU)
Monash University
Reduced inequalities
Openalex Percentile: Top 70%
Health Policy Implementation Science
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Who CaREs - We do: Development of a community and researcher engagement program in translational medicine — Karen Alt, Gabriella Tikellis, et al. · Research Involvement and Engagement (2026) | TGRS Research Map | TGRS