The journey to diagnosis for patients with CIDP: results from a real-world international survey
Median time to diagnosis for CIDP patients was 7 months; over a third had at some point been misdiagnosed. Mild symptoms, having variant CIDP and having been misdiagnosed were associated with longer time to diagnosis. Further research into the causes of diagnostic delay and the impact of late diagnosis and treatment is needed.
Authors
- Jean Philippe Plançon
- Jack Wright (ORCID: https://orcid.org/0000-0002-7380-9754)
- Yusuf A. Rajabally (ORCID: https://orcid.org/0000-0002-7170-8343)
- Sandra Paci
- Febe Marloes Brackx
- Chelsey Fix
- Yasmin Taylor (ORCID: https://orcid.org/0000-0003-4454-5013)
- Lucas Van de Veire
- Sarah Dewilde
- Alejandra Pérez del Real
- Clémence Arvin-Berod
- Richard Sperry
Institutions
- Aston University (GB)
- European CanCer Organisation (BE)
- Aston Medical (France) (FR)
- Adelphi Group (United Kingdom) (GB)
- Association Francaise contre les Myopathies (FR)
- Light Prescriptions Innovators (Spain) (ES)
- Department of Health Services (NP)
- Argenx (Belgium) (BE)
- GBS/CIDP Foundation International (US)
Publication Details
- Journal
- Frontiers in Neurology
- Published
- 2026-02-04
- DOI
- https://doi.org/10.3389/fneur.2025.1748903
- Primary Topic
- Peripheral Neuropathies and Disorders
- Type
- article
- Field-Weighted Citation Impact
- 0.00