Co‐Design of a New Integrated Care Model With People Affected by Huntington's Disease: A Mixed Methods Study
A group of 25 experts by lived experience of HD and other neurological disorders, co-designed this research project, working with the researchers from conception of the studies to analysis and interpretation of the data.
Authors
- Dorit Kunkel (ORCID: https://orcid.org/0000-0003-4449-1414)
- Karine Manera (ORCID: https://orcid.org/0000-0002-0552-6074)
- Nick Goodwin
- Christopher Kipps (ORCID: https://orcid.org/0000-0002-5205-9712)
- Sandra Bartolomeu Pires
- Mari Carmen Portillo
Institutions
- The University of Sydney (AU)
- University Hospital Southampton NHS Foundation Trust (GB)
- NIHR Southampton Biomedical Research Centre (GB)
- National University Health System (SG)
- University of Southampton (GB)
- Wessex Institute of Technology (GB)
Publication Details
- Journal
- Health Expectations
- Published
- 2026-02-01
- DOI
- https://doi.org/10.1111/hex.70584
- Primary Topic
- Genetic Neurodegenerative Diseases
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- National Institute for Health and Care Research