SUDEP Awareness and Effect on Parental Trauma, Grief, and Coping After the Death of a Child
Previous awareness of SUDEP (or lack thereof) has complex and far-reaching effects on the subsequent parental perceived trauma, grief, and coping processes. Furthermore, emergency responders, official personnel, and treating physicians may mishandle the aftermath of SUDEP. This study's findings strongly advocate for a paradigm shift in SUDEP-related practices across multiple disciplines, including legislation. Emphasis should be placed on increasing proactive SUDEP counseling to mitigate the traumatic effect and subsequent grieving process when SUDEP occurs.
Authors
- Daniel Friedman
- David N. Williams (ORCID: https://orcid.org/0000-0002-5278-7437)
- Gardiner Lapham
- Itay Tokatly Latzer
- Alison Kukla
- Orit Karnieli-Miller
Institutions
- Boston Children's Hospital (US)
- Harvard University (US)
- Medical University of Graz (AT)
- NYU Langone Health (US)
- Boston Children's Museum (US)
- International League Against Epilepsy (US)
Publication Details
- Journal
- Neurology
- Published
- 2026-01-30
- DOI
- https://doi.org/10.1212/wnl.0000000000214623
- Citations
- 2
- Primary Topic
- Grief, Bereavement, and Mental Health
- Type
- article
- Field-Weighted Citation Impact
- 88.22