Abstract NS1: Ability and Capacity Are Not Equivalent to Capability in Stroke Survivor–Caregiver Dyads: A Systematic Review and Concept Analysis.
Introduction: Stroke is one of the leading causes of disability worldwide, with significant consequences for the quality of life (QoL) of both survivors and informal caregivers. Caregiver preparedness can help reduce the burden and mitigate declines in QoL, but this does not always translate into effective, concrete skills and real capacities to act. Within this context, Amartya Sen’s Capability Approach provides a framework to analyze how the stroke survivor–caregiver dyad can transform knowledge into practical, adaptive behaviors. Objectives: To clarify and define the concept of capability in stroke survivors and their caregivers, and to develop a conceptual framework. Methods: The review was conducted in accordance with PRISMA 2020 guidelines and registered in PROSPERO (ID: CRD420250653734). Qualitative, quantitative, and mixed-methods studies exploring capability or related constructs in post-stroke contexts were included. Methodological quality was assessed using Joanna Briggs Institute (JBI) appraisal tools. Data were synthesized through the lens of Sen and Nussbaum’s Capability Approach, categorizing evidence into basic, internal, and combined capabilities. Results: In total, 4,759 records were screened, of which 22 met the inclusion and quality criteria. Conceptual analysis revealed that dyadic capability is grounded in three key attributes: self-efficacy, resilience, and motivation. Educational and psychoeducational interventions, particularly those targeting the dyad, were associated with improved competence, relationship quality, and mutual well-being, while also reducing the burden and depressive symptoms. However, reported preparedness did not consistently translate into enacted capability, underscoring the need for strategies aimed at fostering operational capacity. To date, no validated instrument exists to specifically measure capability in stroke survivor–caregiver dyads. Conclusion: In conclusion, capability extends beyond preparedness and competence, reflecting the dyad’s actual ability to act, adapt, and grow together throughout the post-stroke trajectory. Promoting capability through tailored educational programs and integrated support may represent a key pathway toward more effective long-term adaptation. Further research is needed to develop dedicated assessment tools and refine interventions that can transform theoretical preparation into sustainable practice.
Authors
- Rosaria Alvaro
- Eleonora Lombardi
- Ercole Vellone
- Gianluca Pucciarelli
- Davide Bartoli
- Federico Cortese
Institutions
- University of Rome Tor Vergata (IT)
- Sapienza University of Rome (IT)
Publication Details
- Journal
- Stroke
- Published
- 2026-01-29
- DOI
- https://doi.org/10.1161/str.57.suppl_1.ns1
- Primary Topic
- Stroke Rehabilitation and Recovery
- Type
- article
- Field-Weighted Citation Impact
- 0.00