“…it is not the sickness itself that kills. It is the emotional trauma”: a qualitative study of the lived experience and systemic barriers of women with breast cancer in Nigeria

Participants reported navigating a complex interplay of financial toxicity, systemic delays, and profound psychosocial distress, and many described drawing on spiritual practices, self-encouragement, and peer connections to cope; several also expressed a desire to support other women by sharing advice or lived experience while going through the care pathway. Strengthening palliative and supportive care in Nigeria should prioritise: (1) financial-protection mechanisms to reduce treatment abandonment; (2) streamlined referral/navigation systems; and (3) integrated psychosocial and peer-support interventions that acknowledge spiritual coping. Further research should investigate survivor-led support models and assess the effectiveness of culturally tailored communication training for oncology teams.

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Publication Details

Journal
Supportive Care in Cancer
Published
2026-01-29
DOI
https://doi.org/10.1007/s00520-026-10377-8
Primary Topic
Cancer survivorship and care
Type
article
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article

“…it is not the sickness itself that kills. It is the emotional trauma”: a qualitative study of the lived experience and systemic barriers of women with breast cancer in Nigeria

Olusegun Abayomi Biyi-Olutunde, Chigozirim Ogubuike, Matthew Allsop, Bassey Ebenso et al.
Supportive Care in Cancer
Cancer survivorship and care
article

“…it is not the sickness itself that kills. It is the emotional trauma”: a qualitative study of the lived experience and systemic barriers of women with breast cancer in Nigeria

Olusegun Abayomi Biyi-Olutunde, Chigozirim Ogubuike, Matthew Allsop, Bassey Ebenso, Elizabeth Abodunrin, Adaorah Enyi, Omolola Salako, Eme O. Asuquo, Kate Absolom
article en

Abstract

Participants reported navigating a complex interplay of financial toxicity, systemic delays, and profound psychosocial distress, and many described drawing on spiritual practices, self-encouragement, and peer connections to cope; several also expressed a desire to support other women by sharing advice or lived experience while going through the care pathway. Strengthening palliative and supportive care in Nigeria should prioritise: (1) financial-protection mechanisms to reduce treatment abandonment; (2) streamlined referral/navigation systems; and (3) integrated psychosocial and peer-support interventions that acknowledge spiritual coping. Further research should investigate survivor-led support models and assess the effectiveness of culturally tailored communication training for oncology teams.

Supportive Care in CancerVol. 34(2)
University of Leeds (GB), University of Lagos (NG), University of Port Harcourt Teaching Hospital (NG), Lagos State University Teaching Hospital (NG), Lagos State Health Service Commission (NG)
Openalex Percentile: Top 74%
Cancer survivorship and care
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“…it is not the sickness itself that kills. It is the emotional trauma”: a qualitative study of the lived experience and systemic barriers of women with breast cancer in Nigeria — Olusegun Abayomi Biyi-Olutunde, Chigozirim Ogubuike, et al. · Supportive Care in Cancer (2026) | TGRS Research Map | TGRS