What is the psychological impact on parents of learning about SUDEP? A mixed methods systematic review

The majority of parents want information on SUDEP despite finding the information distressing. Parents use SUDEP information to adjust their caregiving e.g. increasing monitoring and supervision or communicating relevant information about their child's epilepsy to others e.g. their child's school. Clinicians play a key role in identifying and supporting the re-appraisal of unhelpful or inaccurate beliefs around SUDEP and can mitigate distress associated with receiving information on SUDEP with clear and supportive communication. This review is registered on PROSPERO (Registration: CRD42024546466).