Key Findings From the World Federation of Haemophilia National Member Organization Survey on Women and Girls With Bleeding Disorders

The survey identified key challenges in providing and delivering care to WGBD. Strategies and initiatives should focus on raising awareness, expanding access to care, establishing special clinics, and improving outreach, as well as increasing women's representation on committees and boards and increasing education initiatives.

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Publication Details

Journal
Haemophilia
Published
2026-01-26
DOI
https://doi.org/10.1111/hae.70213
Primary Topic
Hemophilia Treatment and Research
Type
article
Field-Weighted Citation Impact
0.00
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article

Key Findings From the World Federation of Haemophilia National Member Organization Survey on Women and Girls With Bleeding Disorders

Ellia Tootoonchian, Baiba Ziemele, Donna Coffin, Salome Mekhuzla et al.
Haemophilia
Hemophilia Treatment and Research
article

Key Findings From the World Federation of Haemophilia National Member Organization Survey on Women and Girls With Bleeding Disorders

Ellia Tootoonchian, Baiba Ziemele, Donna Coffin, Salome Mekhuzla, Dawn Rotellini, Yannick Collé, Louise Phillips, Roshni Kulkarni, Cassie Osejo, Tahira Zafar, Anupama Pattiyeri, Andreina Tovar
article en

Abstract

The survey identified key challenges in providing and delivering care to WGBD. Strategies and initiatives should focus on raising awareness, expanding access to care, establishing special clinics, and improving outreach, as well as increasing women's representation on committees and boards and increasing education initiatives.

HaemophiliaVol. 32(2)
Rawalpindi Medical University (PK), Canadian Hemophilia Society (CA), Association Française de Chirurgie (FR), Hemophilia Federation of America (US), Latvia Business College (LV), Panama Canal Authority (PA), Wellington Medical Research Foundation (NZ), Michigan State University (US)
Gender equality
Openalex Percentile: Top 80%
Hemophilia Treatment and Research
DOIOpen Access PDFOpenAlex
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Key Findings From the World Federation of Haemophilia National Member Organization Survey on Women and Girls With Bleeding Disorders — Ellia Tootoonchian, Baiba Ziemele, et al. · Haemophilia (2026) | TGRS Research Map | TGRS