Perspectives of Persons With Lived Experience on Acceptable Outcome After Severe Acute Traumatic Brain Injury
Persons with TBI and TBI caregivers identified recovery of communication as the MAO. Persons with lived experience appear more accepting of a greater burden of disability than TBI investigators and providers. Recognizing this disparity in perspectives may influence clinical decision-making regarding goals of care and suggests the need for a more person-centered approach to TBI outcome assessment.
Authors
- Enrico Quilico (ORCID: https://orcid.org/0000-0002-1958-0303)
- Bhumi Patel
- Lindsay Wilson
- Amanda R. Merner (ORCID: https://orcid.org/0000-0001-6450-170X)
- Ellyn Pier
- Tiffany Campbell
- Lydia Borsi (ORCID: https://orcid.org/0009-0007-7607-3264)
- Jessica Wolfe
- Samantha Kanny
- Lillian Droscha
- Ryan Filoramo
- Danielle Burnetta
- Kathleen McColgan
- Yelena G. Bodien
- Mallory Spring
- Joseph T. Giacino
- William J. W. Choi
- Gabriel Lázaro-Muñoz
- Jean Paul Vazquez Rivera
Institutions
- University of Stirling (GB)
- Harvard University (US)
- MGH Institute of Health Professions (US)
- Brown University (US)
- Spaulding Rehabilitation Hospital (US)
- Massachusetts General Hospital (US)
- Center for Practical Bioethics (US)
- Baylor Medical Center at Garland (US)
- Vanderbilt University Medical Center (US)
Publication Details
- Journal
- Critical Care Medicine
- Published
- 2026-01-23
- DOI
- https://doi.org/10.1097/ccm.0000000000007017
- Primary Topic
- Traumatic Brain Injury Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00