Transformations in Diabetes Care: Lessons From Commons‐Based, Peer‐Produced Citizen Science

Medical technologies have historically been the domain of private entities and public institutions. However, this market-state model is being challenged by commons-based, peer-produced citizen science. Here, we present a community of people with diabetes, which has developed life-critical medical devices through open-source innovation, as a case study in the possibilities and constraints of a more commons-centric form of healthcare. We draw on insights from an existing body of social scientific research, as well as the first author's personal experience as a member of this movement, putting them in the context of a theoretical approach in which commoning is viewed as a transformative social paradigm. Drawing on Bollier and Helfrich's patterns of commoning, we offer two linked conceptual contributions which function as an analytical lens. First, we outline what we call the 'diabetes commons' to understand the dynamics of how the community established an alternative innovation ecosystem. Second, we posit 'medical technology provisioning', whereby production, consumption and follow-up care are blended into a holistic whole. We highlight how promoting an open innovation model allowed the community to avoid enclosure and transformed the diabetes device landscape. We also argue that this openness has created challenges for its autonomy and sustainability as a commons.

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Publication Details

Journal
Sociology of Health & Illness
Published
2026-01-22
DOI
https://doi.org/10.1111/1467-9566.70140
Primary Topic
ICT in Developing Communities
Type
article
Field-Weighted Citation Impact
0.00

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article

Transformations in Diabetes Care: Lessons From Commons‐Based, Peer‐Produced Citizen Science

Muireann Quigley, Shane O'Donnell
Sociology of Health & Illness
ICT in Developing Communities
article

Transformations in Diabetes Care: Lessons From Commons‐Based, Peer‐Produced Citizen Science

Muireann Quigley, Shane O'Donnell
article en

Abstract

Medical technologies have historically been the domain of private entities and public institutions. However, this market-state model is being challenged by commons-based, peer-produced citizen science. Here, we present a community of people with diabetes, which has developed life-critical medical devices through open-source innovation, as a case study in the possibilities and constraints of a more commons-centric form of healthcare. We draw on insights from an existing body of social scientific research, as well as the first author's personal experience as a member of this movement, putting them in the context of a theoretical approach in which commoning is viewed as a transformative social paradigm. Drawing on Bollier and Helfrich's patterns of commoning, we offer two linked conceptual contributions which function as an analytical lens. First, we outline what we call the 'diabetes commons' to understand the dynamics of how the community established an alternative innovation ecosystem. Second, we posit 'medical technology provisioning', whereby production, consumption and follow-up care are blended into a holistic whole. We highlight how promoting an open innovation model allowed the community to avoid enclosure and transformed the diabetes device landscape. We also argue that this openness has created challenges for its autonomy and sustainability as a commons.

Sociology of Health & IllnessVol. 48(2)
University College Dublin (IE), University of Birmingham (GB)
Wellcome Trust, European Commission, Research England
Industry, innovation and infrastructure
Openalex Percentile: Top 87%
ICT in Developing Communities
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