Alberta Family Caregiver Strategy and Action Plan: Enhancing Integration Across Health and Social Care Systems

Family caregivers provide up to 90% of care in Alberta's communities and play an essential role in sustaining the province's health and social care systems, yet they remain under-recognized and insufficiently supported. To address this gap, we co-designed the Alberta Family Caregiver Strategy and Action Plan (2024-2025), a provincial framework developed through participatory research and collective impact methods. Guided by principles of co-production, equity, and lived experience, the project engaged over 500 stakeholders, including caregivers, healthcare providers, educators, employers, and policymakers, through Phase 1 interviews (health/community leaders, <i>n</i> = 44; Family and Community Support Services (FCSS), <i>n</i> = 47; navigation experts, <i>n</i> = 9), Phase 2 co-design team consultations, and Phase 3 sector roundtables (<i>n</i> = 52). Using reflexive thematic analysis, we identified four foundational caregiver strategies, Recognition, Partnership, Needs Assessment, and Navigation, and four enabling conditions: Education, Workplace Supports, Policy and Research and Data Infrastructure. These elements were synthesized into an eight-priority Alberta Caregiver Strategy and Action Plan Framework, a practical way to connect validated priorities with coordinated, measurable implementation across settings. Participants emphasized four key enablers essential to making caregiver inclusion more feasible and sustainable: education, workplace supports, policy infrastructure, and research and evaluation. Findings highlight strong cross-sector consensus that caregiver inclusion must be embedded into routine practice, supported by consistent policy, and reinforced through provincial coordination with local adaptation. The Alberta Family Caregiver Strategy provides a practical, evidence-informed plan for transforming fragmented supports into a coherent, caregiver-inclusive ecosystem that strengthens both caregiver well-being and system sustainability.

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Publication Details

Journal
International Journal of Environmental Research and Public Health
Published
2026-01-22
DOI
https://doi.org/10.3390/ijerph23010137
Primary Topic
Intergenerational Family Dynamics and Caregiving
Type
article
Field-Weighted Citation Impact
0.00

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article

Alberta Family Caregiver Strategy and Action Plan: Enhancing Integration Across Health and Social Care Systems

Arlene Huhn, Lesley Charles, Vivian Ewa, Sanah Jowhari et al.
International Journal of Environmental Research and Public Health
Intergenerational Family Dynamics and Caregiving
article

Alberta Family Caregiver Strategy and Action Plan: Enhancing Integration Across Health and Social Care Systems

Arlene Huhn, Lesley Charles, Vivian Ewa, Sanah Jowhari, Michelle Grinman, Jasneet Parmar, Suzette Brémault‐Phillips, Darlene Schindel, Cheryl Cameron, Josephine Amelio, Fiona Ross, Sharon Anderson, Linda Powell, Johnna Lowther, Leeca Sonnema, Cindy Sim, Angie Grewal, Ginger Bitzer, Kimberly Shapkin, Shannon Saunders, Charlotte Pooler, Andrew Karesa, Paige Murphy
article en

Abstract

Family caregivers provide up to 90% of care in Alberta's communities and play an essential role in sustaining the province's health and social care systems, yet they remain under-recognized and insufficiently supported. To address this gap, we co-designed the Alberta Family Caregiver Strategy and Action Plan (2024-2025), a provincial framework developed through participatory research and collective impact methods. Guided by principles of co-production, equity, and lived experience, the project engaged over 500 stakeholders, including caregivers, healthcare providers, educators, employers, and policymakers, through Phase 1 interviews (health/community leaders, <i>n</i> = 44; Family and Community Support Services (FCSS), <i>n</i> = 47; navigation experts, <i>n</i> = 9), Phase 2 co-design team consultations, and Phase 3 sector roundtables (<i>n</i> = 52). Using reflexive thematic analysis, we identified four foundational caregiver strategies, Recognition, Partnership, Needs Assessment, and Navigation, and four enabling conditions: Education, Workplace Supports, Policy and Research and Data Infrastructure. These elements were synthesized into an eight-priority Alberta Caregiver Strategy and Action Plan Framework, a practical way to connect validated priorities with coordinated, measurable implementation across settings. Participants emphasized four key enablers essential to making caregiver inclusion more feasible and sustainable: education, workplace supports, policy infrastructure, and research and evaluation. Findings highlight strong cross-sector consensus that caregiver inclusion must be embedded into routine practice, supported by consistent policy, and reinforced through provincial coordination with local adaptation. The Alberta Family Caregiver Strategy provides a practical, evidence-informed plan for transforming fragmented supports into a coherent, caregiver-inclusive ecosystem that strengthens both caregiver well-being and system sustainability.

International Journal of Environmental Research and Public HealthVol. 23(1)
Alberta Health Services (CA), Alberta Environment and Protected Areas (CA), University of Alberta (CA), University of Calgary (CA), Alzheimer Society of Canada (CA), CARE Canada (CA), Children’s Village (US), Alberta Health (CA), Canadian Virtual University (CA), Centre for Science, Society and Citizenship (IT)
University of Alberta
Openalex Percentile: Top 83%
Intergenerational Family Dynamics and Caregiving
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