Alberta Family Caregiver Strategy and Action Plan: Enhancing Integration Across Health and Social Care Systems
Family caregivers provide up to 90% of care in Alberta's communities and play an essential role in sustaining the province's health and social care systems, yet they remain under-recognized and insufficiently supported. To address this gap, we co-designed the Alberta Family Caregiver Strategy and Action Plan (2024-2025), a provincial framework developed through participatory research and collective impact methods. Guided by principles of co-production, equity, and lived experience, the project engaged over 500 stakeholders, including caregivers, healthcare providers, educators, employers, and policymakers, through Phase 1 interviews (health/community leaders, <i>n</i> = 44; Family and Community Support Services (FCSS), <i>n</i> = 47; navigation experts, <i>n</i> = 9), Phase 2 co-design team consultations, and Phase 3 sector roundtables (<i>n</i> = 52). Using reflexive thematic analysis, we identified four foundational caregiver strategies, Recognition, Partnership, Needs Assessment, and Navigation, and four enabling conditions: Education, Workplace Supports, Policy and Research and Data Infrastructure. These elements were synthesized into an eight-priority Alberta Caregiver Strategy and Action Plan Framework, a practical way to connect validated priorities with coordinated, measurable implementation across settings. Participants emphasized four key enablers essential to making caregiver inclusion more feasible and sustainable: education, workplace supports, policy infrastructure, and research and evaluation. Findings highlight strong cross-sector consensus that caregiver inclusion must be embedded into routine practice, supported by consistent policy, and reinforced through provincial coordination with local adaptation. The Alberta Family Caregiver Strategy provides a practical, evidence-informed plan for transforming fragmented supports into a coherent, caregiver-inclusive ecosystem that strengthens both caregiver well-being and system sustainability.
Authors
- Arlene Huhn
- Lesley Charles (ORCID: https://orcid.org/0000-0003-2127-3502)
- Vivian Ewa (ORCID: https://orcid.org/0000-0003-3080-0327)
- Sanah Jowhari
- Michelle Grinman
- Jasneet Parmar (ORCID: https://orcid.org/0000-0002-9518-3510)
- Suzette Brémault‐Phillips (ORCID: https://orcid.org/0000-0003-4167-1815)
- Darlene Schindel
- Cheryl Cameron (ORCID: https://orcid.org/0000-0002-4085-7995)
- Josephine Amelio
- Fiona Ross (ORCID: https://orcid.org/0000-0003-0909-6988)
- Sharon Anderson (ORCID: https://orcid.org/0000-0002-6740-1509)
- Linda Powell
- Johnna Lowther
- Leeca Sonnema
- Cindy Sim
- Angie Grewal
- Ginger Bitzer
- Kimberly Shapkin
- Shannon Saunders
- Charlotte Pooler
- Andrew Karesa
- Paige Murphy
Institutions
- Alberta Health Services (CA)
- Alberta Environment and Protected Areas (CA)
- University of Alberta (CA)
- University of Calgary (CA)
- Alzheimer Society of Canada (CA)
- CARE Canada (CA)
- Children’s Village (US)
- Alberta Health (CA)
- Canadian Virtual University (CA)
- Centre for Science, Society and Citizenship (IT)
Publication Details
- Journal
- International Journal of Environmental Research and Public Health
- Published
- 2026-01-22
- DOI
- https://doi.org/10.3390/ijerph23010137
- Primary Topic
- Intergenerational Family Dynamics and Caregiving
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- University of Alberta