Incidental genomic findings in large scale research: using the “3-I framework” to reveal policy considerations
Explicating policy considerations can help to further discuss and decide how IF policies will impact not only research participants, but also patients, citizens, professionals, the public and diverse populations. Technologies, cultural values, and laws and regulations evolve over time. Therefore, continuous discussions should be held.
Authors
- Wendy Rodenburg
- Suzanne M. Onstwedder (ORCID: https://orcid.org/0000-0002-9698-191X)
- Martina C. Cornel (ORCID: https://orcid.org/0000-0002-5397-5544)
- Adrian Thorogood
- Carla Van El
- Tessel Rigter
Institutions
- Terry Fox Research Institute (CA)
- Center for Personalized Cancer Treatment (NL)
- National Institute for Public Health and the Environment (NL)
- National Institute of Public Health (LA)
- Vrije Universiteit Amsterdam (NL)
Publication Details
- Journal
- Frontiers in Genetics
- Published
- 2026-01-19
- DOI
- https://doi.org/10.3389/fgene.2025.1603420
- Primary Topic
- Ethics in Clinical Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00