The moral-behavioural logic of silence: gender, stigma, and disclosure among long-term HIV survivors

Silence, the deliberate non-disclosure of HIV status - remains an overlooked yet central aspect of long-term antiretroviral therapy (ART) survivorship. While disclosure is promoted as empowerment, such framings may neglect the gendered, relational, and institutional contexts in which non-disclosure occurs. We conducted in-depth interviews with 21 long-term ART users (10-22 years on treatment) in Tamil Nadu, India, and analysed narratives using stigma, social identity, emotion work, spiritual reframing, and institutional betrayal lenses. Silence emerged not as absence, but as a moral-behavioural strategy. Women's silence reflected care-based labour aimed at protecting children and preserve family integrity; while men often framed silence as endurance, restraint, or sacrifice. Participants sustained concealment through spiritual meaning-making and, over time, selectively withdrew from systems experienced as stigmatising or confidentiality-compromising. We identified four interlinked patterns - of emotional rupture, strategic non-disclosure, moral reframing, and institutional withdrawal - highlighting silence as an adaptive, gendered survival strategy. HIV care systems should depathologize silence and redesign counselling approaches to centre dignity, caregiving, and emotional safety.

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Publication Details

Journal
AIDS Care
Published
2026-01-19
DOI
https://doi.org/10.1080/09540121.2026.2614347
Primary Topic
HIV/AIDS Research and Interventions
Type
article
Field-Weighted Citation Impact
0.00
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article

The moral-behavioural logic of silence: gender, stigma, and disclosure among long-term HIV survivors

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AIDS Care
HIV/AIDS Research and Interventions
article

The moral-behavioural logic of silence: gender, stigma, and disclosure among long-term HIV survivors

Suman Kanougiya, Venkatesan Chakrapani, Janakiram Marimuthu, Ruban Nelson, Pramod K
article en

Abstract

Silence, the deliberate non-disclosure of HIV status - remains an overlooked yet central aspect of long-term antiretroviral therapy (ART) survivorship. While disclosure is promoted as empowerment, such framings may neglect the gendered, relational, and institutional contexts in which non-disclosure occurs. We conducted in-depth interviews with 21 long-term ART users (10-22 years on treatment) in Tamil Nadu, India, and analysed narratives using stigma, social identity, emotion work, spiritual reframing, and institutional betrayal lenses. Silence emerged not as absence, but as a moral-behavioural strategy. Women's silence reflected care-based labour aimed at protecting children and preserve family integrity; while men often framed silence as endurance, restraint, or sacrifice. Participants sustained concealment through spiritual meaning-making and, over time, selectively withdrew from systems experienced as stigmatising or confidentiality-compromising. We identified four interlinked patterns - of emotional rupture, strategic non-disclosure, moral reframing, and institutional withdrawal - highlighting silence as an adaptive, gendered survival strategy. HIV care systems should depathologize silence and redesign counselling approaches to centre dignity, caregiving, and emotional safety.

AIDS Care
SRM Institute of Science and Technology (IN), National Institute of Advanced Studies (IN), Stanley Medical College (IN), India HIV/AIDS Alliance (IN), Centre for Sexuality and Health Research and Policy (IN)
Gender equality
Openalex Percentile: Top 81%
HIV/AIDS Research and Interventions
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