The European Health Data Space: an opportunity to strengthen citizen rights and engage citizens in health data governance

The study provides valuable insights for Member States in developing strategies to engage citizens in the secondary use of health data under the EHDS framework. It highlights the importance of an easily accessible opt-out mechanism, reinforced by clear and effective communication to prevent misinformation, emphasize the tangible benefits of data sharing, and account for the influence of institutional trust and country-specific contexts in shaping public attitudes toward the EHDS.