Anticipatory guidance for parents following paediatric intensive care: a scoping review and environmental scan of recovery-focused resources

Anticipatory guidance following PICU discharge must move beyond information provision toward capacity building that supports parents to apply, evaluate, and act on information. Embedding health literacy principles - plain language, readability testing, co-design, and cultural responsiveness - into resource development is critical to ensure accessibility and equity. Clinician education and integration into routine workflows are equally important to optimise resource impact. A universal precautions approach offers a practical strategy for health services to ensure all families, regardless of literacy level, receive clear, actionable, and supportive guidance.

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Publication Details

Journal
Intensive and Critical Care Nursing
Published
2026-01-19
DOI
https://doi.org/10.1016/j.iccn.2025.104332
Primary Topic
Infant Development and Preterm Care
Type
article
Field-Weighted Citation Impact
0.00
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article

Anticipatory guidance for parents following paediatric intensive care: a scoping review and environmental scan of recovery-focused resources

Debbie A. Long, Leigh Dunn, Suzanne Williams
Intensive and Critical Care Nursing
Infant Development and Preterm Care
article

Anticipatory guidance for parents following paediatric intensive care: a scoping review and environmental scan of recovery-focused resources

Debbie A. Long, Leigh Dunn, Suzanne Williams
article en

Abstract

Anticipatory guidance following PICU discharge must move beyond information provision toward capacity building that supports parents to apply, evaluate, and act on information. Embedding health literacy principles - plain language, readability testing, co-design, and cultural responsiveness - into resource development is critical to ensure accessibility and equity. Clinician education and integration into routine workflows are equally important to optimise resource impact. A universal precautions approach offers a practical strategy for health services to ensure all families, regardless of literacy level, receive clear, actionable, and supportive guidance.

Intensive and Critical Care NursingVol. 93
Queensland University of Technology (AU), Children's Health Queensland Hospital and Health Service (AU)
Quality Education
Openalex Percentile: Top 85%
Infant Development and Preterm Care
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