Using a Community-Engaged Research Approach to Prioritize Self-Management Needs of Adults with Sickle Cell Disease
Health care gaps and health care providers' biases are barriers to successful SCD self-management. Therefore, for individuals with SCD, interventions should be developed to anticipate the transition from pediatric care to adult care, improve health care, and support self-management strategies and skills.
Authors
- Kristin Haglund (ORCID: https://orcid.org/0000-0002-2786-5499)
- Weneaka D. Jones (ORCID: https://orcid.org/0000-0002-8157-481X)
- Maryellen Potts
- Lee Za Ong (ORCID: https://orcid.org/0000-0002-2102-1199)
- Elodie Ontala
- Dora Clayton-Jones (ORCID: https://orcid.org/0000-0003-2092-8909)
- Elizabeth DeVries
- Nadine Matthie
Publication Details
- Journal
- Progress in community health partnerships
- Published
- 2025-12-01
- DOI
- https://doi.org/10.1353/cpr.2025.a979199
- Primary Topic
- Adolescent and Pediatric Healthcare
- Type
- article
- Field-Weighted Citation Impact
- 0.00