Caregiver-reported quality of life in individuals with developmental and epileptic encephalopathy and other severe neurodevelopmental encephalopathies
Regression tree analysis suggests that cognition and use of touchscreens were important factors for QOL. Findings suggest small neurodevelopmental and functional gains may meaningfully improve quality of life for individuals with severe neurodevelopmental encephalopathy.
Authors
- Melissa K. Licari (ORCID: https://orcid.org/0000-0003-3705-5323)
- Mary Wojnaroski (ORCID: https://orcid.org/0009-0006-5595-0419)
- Natasha N. Ludwig (ORCID: https://orcid.org/0000-0002-8934-7267)
- Gabrielle Conecker (ORCID: https://orcid.org/0000-0003-3274-0292)
- JayEtta Hecker (ORCID: https://orcid.org/0009-0001-2704-5044)
- Rebecca Hommer (ORCID: https://orcid.org/0009-0005-4800-6182)
- Kelly Muzyczka (ORCID: https://orcid.org/0000-0001-5307-0692)
- Jenny Downs
- Peter Jacoby
Institutions
- Kennedy Krieger Institute (US)
- Nationwide Children's Hospital (US)
- Johns Hopkins University (US)
- The Kids Research Institute Australia (AU)
- Curtin University (AU)
- Epilepsy Foundation (US)
- University of Maryland, College Park (US)
Publication Details
- Journal
- Quality of Life Research
- Published
- 2026-01-14
- DOI
- https://doi.org/10.1007/s11136-025-04153-0
- Primary Topic
- Epilepsy research and treatment
- Type
- article
- Field-Weighted Citation Impact
- 0.00