florio HAEMO—A Digital Medical Device for Monitoring of Treatment, Symptoms and Physical Activities for People Living With Haemophilia
Florio HAEMO allows the collection of contemporaneous data to monitor treatment, like factor level, adherence and consumption as well as monitoring treatment outcomes, including pain, bleeds, wellbeing and levels of physical activity to support self-management, shared decision-making and to enable better care for PLWH. Data collected over time may help to show the impact of individualised prophylaxis and may support the definition of factor levels required for good bleed and joint protection in a real world setting from daily life to physical activities.
Authors
- Katharina Nora Steinitz
- C Königs
- Armin J. Reininger
- F. Peyvandi
- S Boix Bonanad
- Jamie O´Hara
- Allfonso Iorio
- Jan Blatny
- Claude Negrier
- Jan Astermark
Institutions
- Université Claude Bernard Lyon 1 (FR)
- Goethe University Frankfurt (DE)
- University of Chester (GB)
- University of Milan (IT)
- Masaryk University (CZ)
- Daresbury Laboratory (GB)
- Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico (IT)
- Hospital Universitari i Politècnic La Fe (ES)
- Communauté urbaine de Lyon (FR)
- Sci-Tech Daresbury (GB)
- University Hospital Frankfurt (DE)
- Skåne University Hospital (SE)
- Supply Chain Competence Center (Germany) (DE)
- Ludwig-Maximilians-Universität München (DE)
- McMaster University (CA)
Publication Details
- Journal
- Haemophilia
- Published
- 2026-01-13
- DOI
- https://doi.org/10.1111/hae.70198
- Primary Topic
- Hemophilia Treatment and Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00