Lessons learned from implementing FAIRification workflows in diabetes research in Germany

The FAIR principles guide data stewardship towards maximizing the value of scientific data while offering a high level of flexibility to accommodate differences in standards and scientific practices. Research communities have developed and implemented domain-specific workflows to make their data FAIR. This work compares the implementation of two externally developed structured FAIRification workflows-a generic workflow and a domain-specific workflow- using the example of metadata captured in diabetes research in Germany and applying the FAIR data maturity model developed by the Research Data Alliance. Interestingly, the implementation of both workflows required similar resources and led us to achieve the same FAIRness rating. We therefore conclude that the adaptations made in the FAIRification workflow for health research data improve efficiency but do not necessarily lead to higher FAIRness scores when applied to core data sets. Based on the results of our workflow comparison, we identified a list of requirements that should be met for the FAIRification of a core data set regardless of the workflow employed. In the future, FAIR data strategies and infrastructure should be planned and implemented as early as possible in the FAIRification journey. It is anticipated that this comparative analysis will help establish standard operating procedures for the FAIRification of core data sets for health studies.

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Publication Details

Journal
PLOS Digital Health
Published
2026-01-13
DOI
https://doi.org/10.1371/journal.pdig.0001139
Primary Topic
Research Data Management Practices
Type
article
Field-Weighted Citation Impact
0.00

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article

Lessons learned from implementing FAIRification workflows in diabetes research in Germany

Renate Schick, Brigitte Fröhlich, Esther Thea Inau, Andreas L. Birkenfeld et al.
PLOS Digital Health
Research Data Management Practices
article

Lessons learned from implementing FAIRification workflows in diabetes research in Germany

Renate Schick, Brigitte Fröhlich, Esther Thea Inau, Andreas L. Birkenfeld, Angela Dedié, Ivona Anastasova, Martin Preusse, Atinkut Alamirrew Zeleke, Michael Roden, Dagmar Waltemath, Martin Hrabě de Angelis
article en

Abstract

The FAIR principles guide data stewardship towards maximizing the value of scientific data while offering a high level of flexibility to accommodate differences in standards and scientific practices. Research communities have developed and implemented domain-specific workflows to make their data FAIR. This work compares the implementation of two externally developed structured FAIRification workflows-a generic workflow and a domain-specific workflow- using the example of metadata captured in diabetes research in Germany and applying the FAIR data maturity model developed by the Research Data Alliance. Interestingly, the implementation of both workflows required similar resources and led us to achieve the same FAIRness rating. We therefore conclude that the adaptations made in the FAIRification workflow for health research data improve efficiency but do not necessarily lead to higher FAIRness scores when applied to core data sets. Based on the results of our workflow comparison, we identified a list of requirements that should be met for the FAIRification of a core data set regardless of the workflow employed. In the future, FAIR data strategies and infrastructure should be planned and implemented as early as possible in the FAIRification journey. It is anticipated that this comparative analysis will help establish standard operating procedures for the FAIRification of core data sets for health studies.

PLOS Digital HealthVol. 5(1)
University of Cologne (DE), Universitätsmedizin Greifswald (DE), Helmholtz Zentrum München (DE), Düsseldorf University Hospital (DE), Deutsches Diabetes-Zentrum e.V. (DE), German Center for Diabetes Research (DE), Heinrich Heine University Düsseldorf (DE), Technical University of Munich (DE), University of Tübingen (DE)
Deutsche Forschungsgemeinschaft
Industry, innovation and infrastructure
Openalex Percentile: Top 93%
Research Data Management Practices
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