What are the symptoms and concerns of young adults living with life-limiting conditions and how well are they captured by patient reported outcome measures? A mixed-methods systematic review and framework synthesis
This review highlights the need for holistic, age-specific person-centred outcome measures for young adults living with life-limiting conditions. We present a conceptual framework of symptoms and concerns that can be used to develop or modify existing patient reported outcome measures for this population.
Authors
- Hannah May Scott (ORCID: https://orcid.org/0000-0003-1243-3500)
- Katherine E Sleeman (ORCID: https://orcid.org/0000-0002-9777-4373)
- India Tunnard (ORCID: https://orcid.org/0000-0002-4542-2624)
- Rachel L Chambers (ORCID: https://orcid.org/0000-0001-6945-5028)
- Lorna K. Fraser
Institutions
- King's College London (GB)
- King's College Hospital NHS Foundation Trust (GB)
- Cicely Saunders International (GB)
Publication Details
- Journal
- Palliative Medicine
- Published
- 2026-01-13
- DOI
- https://doi.org/10.1177/02692163251405370
- Primary Topic
- Adolescent and Pediatric Healthcare
- Type
- article
- Field-Weighted Citation Impact
- 0.00