Pathways and Roadblocks in Navigating Online Cancer Communities: Qualitative Study Among Young Adult Cancer Survivors

YA cancer survivors navigated a fragmented and emotionally complex digital landscape in search of social support. Their ability to access and engage with online communities was shaped not only by individual agency and digital literacy but also by structural and relational factors. This study underscores the need for more discoverable, inclusive, and sustainable digital support environments. Oncology professionals and peer survivors can play a vital role in facilitating safe, informed access to online cancer communities. Multilevel psychoeducation and training with health care providers, YA cancer survivors, and online community facilitators are warranted to bridge gaps and enhance equity in digital survivorship care.

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Publication Details

Journal
JMIR Cancer
Published
2026-01-12
DOI
https://doi.org/10.2196/79893
Primary Topic
Childhood Cancer Survivors' Quality of Life
Type
article
Field-Weighted Citation Impact
0.00
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article

Pathways and Roadblocks in Navigating Online Cancer Communities: Qualitative Study Among Young Adult Cancer Survivors

Erin E. Donovan, Lailea Noel, Leyi Zhou, Barbara Jones et al.
JMIR Cancer
Childhood Cancer Survivors' Quality of Life
article

Pathways and Roadblocks in Navigating Online Cancer Communities: Qualitative Study Among Young Adult Cancer Survivors

Erin E. Donovan, Lailea Noel, Leyi Zhou, Barbara Jones, Qi CHEN
article en

Abstract

YA cancer survivors navigated a fragmented and emotionally complex digital landscape in search of social support. Their ability to access and engage with online communities was shaped not only by individual agency and digital literacy but also by structural and relational factors. This study underscores the need for more discoverable, inclusive, and sustainable digital support environments. Oncology professionals and peer survivors can play a vital role in facilitating safe, informed access to online cancer communities. Multilevel psychoeducation and training with health care providers, YA cancer survivors, and online community facilitators are warranted to bridge gaps and enhance equity in digital survivorship care.

JMIR CancerVol. 12
Boston University (US), Hunter College (US), The University of Texas at Austin (US), University of California, Berkeley (US)
Openalex Percentile: Top 90%
Childhood Cancer Survivors' Quality of Life
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