Pathways and Roadblocks in Navigating Online Cancer Communities: Qualitative Study Among Young Adult Cancer Survivors
YA cancer survivors navigated a fragmented and emotionally complex digital landscape in search of social support. Their ability to access and engage with online communities was shaped not only by individual agency and digital literacy but also by structural and relational factors. This study underscores the need for more discoverable, inclusive, and sustainable digital support environments. Oncology professionals and peer survivors can play a vital role in facilitating safe, informed access to online cancer communities. Multilevel psychoeducation and training with health care providers, YA cancer survivors, and online community facilitators are warranted to bridge gaps and enhance equity in digital survivorship care.
Authors
- Erin E. Donovan (ORCID: https://orcid.org/0000-0001-7030-4454)
- Lailea Noel (ORCID: https://orcid.org/0000-0002-5440-8998)
- Leyi Zhou
- Barbara Jones
- Qi CHEN
Institutions
- Boston University (US)
- Hunter College (US)
- The University of Texas at Austin (US)
- University of California, Berkeley (US)
Publication Details
- Journal
- JMIR Cancer
- Published
- 2026-01-12
- DOI
- https://doi.org/10.2196/79893
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 0.00