Towards best practice recommendations: Perspectives from Australian GPs to inform the use of general practice data for research – A modified Delphi study
This study highlights the need for a nationally agreed remuneration model for general practices that contribute data, clearer ethical guidance for engaging vulnerable populations and reform of statutory frameworks to support responsible data use. The lack of consensus on community involvement is concerning, especially as initiatives such as the Australian Institute of Health and Welfare (AIHW) and Primary Health Networks (PHN) partnership advance national data standards. Bridging this gap is essential to align professional practice with public expectations and ensure inclusive, ethically robust research.
Authors
- Felicity Flack (ORCID: https://orcid.org/0000-0003-4407-3562)
- Chris Degeling (ORCID: https://orcid.org/0000-0003-4279-3443)
- Anthony Scott Brown (ORCID: https://orcid.org/0000-0001-7246-9068)
- Belinda Fabrianesi (ORCID: https://orcid.org/0000-0001-8134-7900)
- Carolyn Adams (ORCID: https://orcid.org/0000-0001-9684-8193)
- Heidi R. Green
- Allison Clarke
- Annette Braunack-Mayer
- Lucy Carolan
- Alberto Nettel Aguirre
- Christian Jung
Institutions
- Consumers Union (US)
- The University of Western Australia (AU)
- University of Wollongong (AU)
- Australian Government (AU)
- Media Design School (NZ)
- Macquarie University (AU)
Publication Details
- Journal
- European Journal of General Practice
- Published
- 2026-01-09
- DOI
- https://doi.org/10.1080/13814788.2025.2601396
- Primary Topic
- Ethics in Clinical Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00