Towards best practice recommendations: Perspectives from Australian GPs to inform the use of general practice data for research – A modified Delphi study

This study highlights the need for a nationally agreed remuneration model for general practices that contribute data, clearer ethical guidance for engaging vulnerable populations and reform of statutory frameworks to support responsible data use. The lack of consensus on community involvement is concerning, especially as initiatives such as the Australian Institute of Health and Welfare (AIHW) and Primary Health Networks (PHN) partnership advance national data standards. Bridging this gap is essential to align professional practice with public expectations and ensure inclusive, ethically robust research.

Authors

Institutions

Publication Details

Journal
European Journal of General Practice
Published
2026-01-09
DOI
https://doi.org/10.1080/13814788.2025.2601396
Primary Topic
Ethics in Clinical Research
Type
article
Field-Weighted Citation Impact
0.00
Controls
|||
ALL TIME
JAN
FEB
MAR
APR
MAY
JUN
JUL
AUG
SEP
OCT
article

Towards best practice recommendations: Perspectives from Australian GPs to inform the use of general practice data for research – A modified Delphi study

Felicity Flack, Chris Degeling, Anthony Scott Brown, Belinda Fabrianesi et al.
European Journal of General Practice
Ethics in Clinical Research
article

Towards best practice recommendations: Perspectives from Australian GPs to inform the use of general practice data for research – A modified Delphi study

Felicity Flack, Chris Degeling, Anthony Scott Brown, Belinda Fabrianesi, Carolyn Adams, Heidi R. Green, Allison Clarke, Annette Braunack-Mayer, Lucy Carolan, Alberto Nettel Aguirre, Christian Jung
article en

Abstract

This study highlights the need for a nationally agreed remuneration model for general practices that contribute data, clearer ethical guidance for engaging vulnerable populations and reform of statutory frameworks to support responsible data use. The lack of consensus on community involvement is concerning, especially as initiatives such as the Australian Institute of Health and Welfare (AIHW) and Primary Health Networks (PHN) partnership advance national data standards. Bridging this gap is essential to align professional practice with public expectations and ensure inclusive, ethically robust research.

European Journal of General PracticeVol. 32(1)
Consumers Union (US), The University of Western Australia (AU), University of Wollongong (AU), Australian Government (AU), Media Design School (NZ), Macquarie University (AU)
Openalex Percentile: Top 93%
Ethics in Clinical Research
AI Navigator

Ask Laika to Summarize, Analyze, and Connect papers live on the map.

Summarize Papers & Methodologies

Extract key findings, datasets, and comparative methods across publications.

Benchmark Rankings & Visual Analytics

Rank top research institutions, authors, funders, topics, and journals by Field-Weighted Citation Impact (FWCI) and paper volume with instant charts.

Connect Distant Disciplines

Bridge topological clusters on the map to find hidden collaborative intersections.

Towards best practice recommendations: Perspectives from Australian GPs to inform the use of general practice data for research – A modified Delphi study — Felicity Flack, Chris Degeling, et al. · European Journal of General Practice (2026) | TGRS Research Map | TGRS