A community-based participatory mixed-method approach on lived water, waste and health insecurity experiences in marginalised Roma communities in Eastern Slovakia

• Environment and health challenges of Roma communities often remain invisible in national statistics, but are well documented in Slovakia • Novel use of participatory visual methods in the context of environmental health in marginalised Roma communities to capture in-depth lived experiences • Unique combination of participatory visual methods with quantitative (HWISE, SanQoL-5) and qualitative data and syndromic surveillance in marginalised communities • Water, waste and environmental hygiene insecurities are main health challenges faced • Working with, and amplifying the voice of a population group at the margins of society With our study in Eastern Slovakia, we aimed to capture lived water, environment and health experiences, implement participatory visual methods in the context of environmental health, apply validated international water insecurity and sanitation related quality of life scales and syndromic surveillance, and uniquely combine participatory visual methods with quantitative (HWISE, SanQoL-5) and qualitative data and syndromic surveillance in marginalised Roma communities, amplifying community challenges and priorities. Data were collected during between October 2024 to May 2025 in three different villages and their included or adjacent Roma settlements from and with people of Roma nationality, and the majority population through survey questionnaire, in-depth interviews, group discussions and photovoice. Water, waste and environmental hygiene insecurities were the health challenges that Roma people addressed most. Water-related perceptions and experiences, and perceptions related to (in)equality differed in Roma and non-Roma respondents, across setllements, and by gender. Roma residents perceived health risks more strongly overall, and reportedly experienced more self-reported symptoms than non Roma residents. Photovoice and related discussions revealed that Roma residents had major concerns with solid waste and the absence of related management, living conditions overall, stray dogs and contaminated surface waters, and resulting health risks. Our direct participatory work with the target population provides a direct, unprecedented and intimate perspective on life within the communities, providing a nuanced, realistic understanding and amplifying everyday challenges faced. Our methodological approach offers opportunities and entry points for application in Powered by Editorial Manager® and ProduXion Manager® from Aries Systems Corporation similarly challenged and complex contexts in marginalised communities at the margins, beyond Roma communities, and beyond Slovakia

Authors

Institutions

Publication Details

Journal
Wellbeing Space and Society
Published
2026-01-01
DOI
https://doi.org/10.1016/j.wss.2026.100346
Primary Topic
Romani and Gypsy Studies
Type
article
Field-Weighted Citation Impact
0.00
Controls
|||
ALL TIME
JAN
FEB
MAR
APR
MAY
JUN
JUL
AUG
SEP
OCT
article

A community-based participatory mixed-method approach on lived water, waste and health insecurity experiences in marginalised Roma communities in Eastern Slovakia

Lukáš Ihnacik, Paula Janeka, Ingrid Papajová, Julia Foellmer et al.
Wellbeing Space and Society
Romani and Gypsy Studies
article

A community-based participatory mixed-method approach on lived water, waste and health insecurity experiences in marginalised Roma communities in Eastern Slovakia

Lukáš Ihnacik, Paula Janeka, Ingrid Papajová, Julia Foellmer, Carmen Anthonj
article en

Abstract

• Environment and health challenges of Roma communities often remain invisible in national statistics, but are well documented in Slovakia • Novel use of participatory visual methods in the context of environmental health in marginalised Roma communities to capture in-depth lived experiences • Unique combination of participatory visual methods with quantitative (HWISE, SanQoL-5) and qualitative data and syndromic surveillance in marginalised communities • Water, waste and environmental hygiene insecurities are main health challenges faced • Working with, and amplifying the voice of a population group at the margins of society With our study in Eastern Slovakia, we aimed to capture lived water, environment and health experiences, implement participatory visual methods in the context of environmental health, apply validated international water insecurity and sanitation related quality of life scales and syndromic surveillance, and uniquely combine participatory visual methods with quantitative (HWISE, SanQoL-5) and qualitative data and syndromic surveillance in marginalised Roma communities, amplifying community challenges and priorities. Data were collected during between October 2024 to May 2025 in three different villages and their included or adjacent Roma settlements from and with people of Roma nationality, and the majority population through survey questionnaire, in-depth interviews, group discussions and photovoice. Water, waste and environmental hygiene insecurities were the health challenges that Roma people addressed most. Water-related perceptions and experiences, and perceptions related to (in)equality differed in Roma and non-Roma respondents, across setllements, and by gender. Roma residents perceived health risks more strongly overall, and reportedly experienced more self-reported symptoms than non Roma residents. Photovoice and related discussions revealed that Roma residents had major concerns with solid waste and the absence of related management, living conditions overall, stray dogs and contaminated surface waters, and resulting health risks. Our direct participatory work with the target population provides a direct, unprecedented and intimate perspective on life within the communities, providing a nuanced, realistic understanding and amplifying everyday challenges faced. Our methodological approach offers opportunities and entry points for application in Powered by Editorial Manager® and ProduXion Manager® from Aries Systems Corporation similarly challenged and complex contexts in marginalised communities at the margins, beyond Roma communities, and beyond Slovakia

Wellbeing Space and Society
Slovak Academy of Sciences (SK), Institute of Parasitology of the Slovak Academy of Sciences (SK), University of Twente (NL)
Clean water and sanitation
Openalex Percentile: Top 93%
Romani and Gypsy Studies
AI Navigator

Ask Laika to Summarize, Analyze, and Connect papers live on the map.

Summarize Papers & Methodologies

Extract key findings, datasets, and comparative methods across publications.

Benchmark Rankings & Visual Analytics

Rank top research institutions, authors, funders, topics, and journals by Field-Weighted Citation Impact (FWCI) and paper volume with instant charts.

Connect Distant Disciplines

Bridge topological clusters on the map to find hidden collaborative intersections.