The CHI-RON Study
Patient engagement and novel recruitment strategies are critical to improving the inclusion of under-represented populations in clinical research and ensuring alignment with the needs of ACHD patients.
Authors
- Adam M. Lubert (ORCID: https://orcid.org/0000-0001-6401-9980)
- Danielle Hile
- Lindsey Rudov (ORCID: https://orcid.org/0000-0002-3257-520X)
- Shreya Papneja
- Dan G. Halpern (ORCID: https://orcid.org/0000-0002-1656-798X)
- Harsimran Singh
- Matthew Lewis (ORCID: https://orcid.org/0000-0002-8991-0638)
- Emily Ruckdeschel
- Richard A. Krasuski (ORCID: https://orcid.org/0000-0003-3150-5215)
- Satinder Sandhu (ORCID: https://orcid.org/0000-0001-7348-7284)
- Mindi Messmer (ORCID: https://orcid.org/0000-0001-9984-4016)
- Scott Leezer
- Roni Jacobsen (ORCID: https://orcid.org/0000-0002-3851-9786)
- Walter Li
- Anitha S. John (ORCID: https://orcid.org/0000-0002-7355-6304)
- Anushree Agarwal (ORCID: https://orcid.org/0000-0001-8535-3152)
- Ali N. Zaidi (ORCID: https://orcid.org/0000-0001-8255-1591)
- Jamie L. Jackson (ORCID: https://orcid.org/0000-0002-1752-1377)
- Sneha Saraf
- Ruth Phillippi
- Aliza Marlin
- Thomas W. Carton
- Rittal Mehta
- Arwa S. Saidi
- Keith Marsolo
- Thomas Young
- Adebola Owolabi
- Kirubel Asfaw
Institutions
- Cincinnati Children's Hospital Medical Center (US)
- Nationwide Children's Hospital (US)
- Children's Hospital of Philadelphia (US)
- Ochsner Health System (US)
- Children's National (US)
- University of Miami (US)
- University of California, San Francisco (US)
- Cornell University (US)
- Texas Health Dallas (US)
- University of Florida (US)
- NYU Langone Health (US)
- Clinical Research Institute (US)
- Children's Hospital Colorado (US)
- Mount Sinai Hospital (US)
- Louisiana Public Health Institute (US)
- Adult Congenital Heart Association (US)
- Health Strat (Kenya) (KE)
- Miami Children's Hospital (US)
- University of Colorado Denver (US)
Publication Details
- Journal
- Medical Care
- Published
- 2026-01-08
- DOI
- https://doi.org/10.1097/mlr.0000000000002222
- Citations
- 1
- Primary Topic
- Congenital Heart Disease Studies
- Type
- article
- Field-Weighted Citation Impact
- 31.52