Patient Voice and Treatment Nonadherence in Cancer Care: A Scoping Review of Sentiment Analysis

<b>Background:</b> Treatment nonadherence in oncology is common. Surveys often miss why patients do not follow recommendations. We synthesised Natural Language Processing (NLP) studies, mainly sentiment analysis, of patient-generated content (social media, forums, blogs, review sites, and survey free text) to identify communication and relationship factors linked to nonadherence and concordance. <b>Methods:</b> We conducted a scoping review (PRISMA-ScR). Searches of PubMed, CINAHL, and Scopus from 2013 to 15 June 2024 identified eligible studies. We included 25 studies. Data were charted by source, cancer type, NLP technique, and adherence/concordance indicators, then synthesised via discourse analysis and narrative synthesis. <b>Results:</b> Four themes emerged: (1) unmet emotional needs; (2) suboptimal information and communication; (3) unclear concordance within person-centred care; and (4) misinformation dynamics and perceived clinician bias. Sentiment analysis helped identify emotions and information gaps that surveys often miss. <b>Conclusions:</b> Patient-voice data suggest practical actions for nursing, including routine distress screening, teach-back, misinformation countermeasures, and explicit concordance checks to improve adherence and shared decision making. <b>Registration:</b> Not registered.

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Publication Details

Journal
Nursing Reports
Published
2026-01-08
DOI
https://doi.org/10.3390/nursrep16010018
Primary Topic
Patient-Provider Communication in Healthcare
Type
article
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article

Patient Voice and Treatment Nonadherence in Cancer Care: A Scoping Review of Sentiment Analysis

Xujuan Zhou, Niall Higgins, Leon Wreyford
Nursing Reports
Patient-Provider Communication in Healthcare
article

Patient Voice and Treatment Nonadherence in Cancer Care: A Scoping Review of Sentiment Analysis

Xujuan Zhou, Niall Higgins, Leon Wreyford
article en

Abstract

<b>Background:</b> Treatment nonadherence in oncology is common. Surveys often miss why patients do not follow recommendations. We synthesised Natural Language Processing (NLP) studies, mainly sentiment analysis, of patient-generated content (social media, forums, blogs, review sites, and survey free text) to identify communication and relationship factors linked to nonadherence and concordance. <b>Methods:</b> We conducted a scoping review (PRISMA-ScR). Searches of PubMed, CINAHL, and Scopus from 2013 to 15 June 2024 identified eligible studies. We included 25 studies. Data were charted by source, cancer type, NLP technique, and adherence/concordance indicators, then synthesised via discourse analysis and narrative synthesis. <b>Results:</b> Four themes emerged: (1) unmet emotional needs; (2) suboptimal information and communication; (3) unclear concordance within person-centred care; and (4) misinformation dynamics and perceived clinician bias. Sentiment analysis helped identify emotions and information gaps that surveys often miss. <b>Conclusions:</b> Patient-voice data suggest practical actions for nursing, including routine distress screening, teach-back, misinformation countermeasures, and explicit concordance checks to improve adherence and shared decision making. <b>Registration:</b> Not registered.

Nursing ReportsVol. 16(1)
University of Southern Queensland (AU), Queensland Centre for Mental Health Research (AU)
Peace, Justice and strong institutions
Openalex Percentile: Top 95%
Patient-Provider Communication in Healthcare
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Patient Voice and Treatment Nonadherence in Cancer Care: A Scoping Review of Sentiment Analysis — Xujuan Zhou, Niall Higgins, et al. · Nursing Reports (2026) | TGRS Research Map | TGRS