Patient and public perspectives on the availability of their health and advance care planning information to support care at the end of life: a mixed-methods questionnaire study

Respondents acknowledged the opportunity for digital systems to enable access to health and advance care planning information but expressed doubts that professionals would retrieve it when needed, citing past failures. Confidence in record accuracy could be strengthened by patient and carer access. Future research should examine whether such access improves alignment of care with patients' wishes.