Advice From Adolescents With Cancer, Their Caregivers, and Clinicians on Utilizing and Improving Patient Portals in Adolescent Oncology Care
This qualitative study provides actionable recommendations for improving portal use, policy, and design for adolescents with cancer. Implementation of these findings and future research can optimize adolescent and caregiver engagement with the portal and portal usability.
Authors
- Lindsay Blazin (ORCID: https://orcid.org/0000-0002-9651-0616)
- Bryan A. Sisk (ORCID: https://orcid.org/0000-0002-2456-2476)
- Mary Claire McGlynn (ORCID: https://orcid.org/0000-0002-2600-6641)
- Karan K. Mirpuri (ORCID: https://orcid.org/0000-0002-9117-9725)
- Christine Bereitschaft (ORCID: https://orcid.org/0000-0003-1336-9643)
- Maya Ilowite (ORCID: https://orcid.org/0000-0002-7961-5491)
- James M. DuBois (ORCID: https://orcid.org/0000-0002-3712-7051)
- Jennifer W. Mack
Institutions
- Washington University in St. Louis (US)
- Riley Hospital for Children (US)
- Dana-Farber/Boston Children's Cancer and Blood Disorders Center (US)
- Indiana University School of Medicine
- Indiana University – Purdue University Indianapolis (US)
Publication Details
- Journal
- Pediatric Blood & Cancer
- Published
- 2026-01-05
- DOI
- https://doi.org/10.1002/1545-5017.70018
- Primary Topic
- Electronic Health Records Systems
- Type
- article
- Field-Weighted Citation Impact
- 0.00