Developing and Testing Electronic Versions of the Advance <scp>QoL</scp> Tools for Collecting Self‐Reports of Quality of Life in Children and Adolescents With Advanced Cancer
Feedback was largely positive. We addressed minor issues using REDCap's features. In its present state, Advance QoL is comprehensible, usable, and considered pertinent by patients. It offers a unique opportunity to collect the self-reported data of a very ill population, thereby providing targets for care.
Authors
- Serge Sultan (ORCID: https://orcid.org/0000-0002-7520-1734)
- Émélie Rondeau
- Marc‐Antoine Marquis (ORCID: https://orcid.org/0000-0003-1576-1147)
- Michel Duval
- Nikita Guarascio (ORCID: https://orcid.org/0009-0009-1848-2443)
- Mathias Tyo‐Gomez
- Bruno Michon
- Lye‐Ann Robichaud
- Marianne Olivier‐D'Avignon
Institutions
- Centre Hospitalier Universitaire Sainte-Justine (CA)
- Université Laval (CA)
- Université de Montréal (CA)
Publication Details
- Journal
- Scandinavian Journal of Caring Sciences
- Published
- 2026-01-04
- DOI
- https://doi.org/10.1111/scs.70170
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Centre hospitalier universitaire Sainte-Justine
- Canadian Institutes of Health Research