Strategies to build trustworthiness and increase diversity in colorectal cancer biospecimen research: a multi-phase, multi-site qualitative study
Our findings provide insight into the factors that influence Black, Latino, and American Indian individuals' decisions to participate in biorepositories. The best practices framework developed from this study presents actionable strategies researchers can adopt to build trustworthiness and increase diversity in colorectal cancer biospecimen research.
Authors
- Suzanne Brodney (ORCID: https://orcid.org/0000-0002-4405-0726)
- Folasade P. May (ORCID: https://orcid.org/0000-0001-6706-8171)
- Jennifer Rountree (ORCID: https://orcid.org/0009-0004-6819-542X)
- Erica T. Warner (ORCID: https://orcid.org/0000-0002-2671-0313)
- David A. Drew (ORCID: https://orcid.org/0000-0003-0377-723X)
- Destiny Harden (ORCID: https://orcid.org/0000-0003-3463-5429)
- Anna Revette (ORCID: https://orcid.org/0000-0002-4590-755X)
- Kristi Roybal (ORCID: https://orcid.org/0000-0002-1274-5240)
- Saul Castro (ORCID: https://orcid.org/0000-0003-3503-8829)
- Kimberly Schoolcraft
- Gina Johnson (ORCID: https://orcid.org/0009-0001-2375-2227)
- Staci J Wendt (ORCID: https://orcid.org/0009-0003-9090-4192)
- Maria Connolly
- Jane Roberts
- Jennifer S. Haas
- Brett Nava-Coulter
Institutions
- Harvard University (US)
- University of California, Los Angeles (US)
- Ronald Reagan UCLA Medical Center (US)
- Massachusetts General Hospital (US)
- Kaiser Permanente Center for Health Research (US)
- Dana-Farber Cancer Institute (US)
- Great Plains Tribal Chairmen’s Health Board (US)
- VA Greater Los Angeles Healthcare System (US)
- Philadelphia Fight (US)
- Providence Health & Services (US)
Publication Details
- Journal
- Journal of Community Genetics
- Published
- 2026-01-02
- DOI
- https://doi.org/10.1007/s12687-025-00855-7
- Primary Topic
- Ethics in Clinical Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Stand Up To Cancer