New SMA era: A broad-range tiered assessment of function for the evolving SMA phenotype (EVOLVE-SMA)
EVOLVE-SMA is a tiered evaluation of function applicable to the new DMT-treated era of SMA. It is a simple, granular, and reliable means to assess meaningful functions that will have value to research, resource allocation, and individual clinical care.
Authors
- Abigail N. Schwaede
- Thomas O. Crawford (ORCID: https://orcid.org/0000-0003-0916-2797)
- Vamshi K. Rao (ORCID: https://orcid.org/0000-0002-0130-2292)
- Laurey Brown
- Kristin J. Krosschell (ORCID: https://orcid.org/0000-0003-2879-5055)
- Terri Carry
- R. Patel
- Jessica Nance (ORCID: https://orcid.org/0000-0003-1769-4144)
- Susan D. Apkon (ORCID: https://orcid.org/0009-0008-9873-7970)
- Jessica Trenkle
- J. Daniel Miller
- Tina D. Duong
- Kerry Vela
- Meghan Moore Burk
- Anne Stratton
- Nancy L Kuntz
- Carolyn Kelley
- Carly Rothman
- Madeline Van Os
- Sara Thinger
- Katie Hoffman
- Kristen Johnson
Institutions
- Lurie Children's Hospital (US)
- Hackensack University Medical Center (US)
- Hawaii Pacific University (US)
- Palo Alto University (US)
- Children's Hospital Colorado (US)
- National Institute of Neurological Disorders and Stroke (US)
- Lurie Children's Hospital (US)
- Johns Hopkins Hospital (US)
- Rocky Mountain University of Health Professions (US)
- University of Colorado Denver (US)
- Stanford University (US)
Publication Details
- Journal
- Journal of Neuromuscular Diseases
- Published
- 2025-12-30
- DOI
- https://doi.org/10.1177/22143602251405346
- Primary Topic
- Neurogenetic and Muscular Disorders Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00