Socioeconomic factors and post-traumatic stress disorder in Polish caregivers of children with rare genetic conditions

This study examined post-traumatic stress disorder (PTSD) severity in caregivers of children with rare genetic conditions, focusing on the role of socioeconomic variables: education, family income, marital status, residence, and religious practice. One hundred parents were recruited: 50 of children with rare diseases and 50 of healthy children. The rare disease group was recruited via a patient association and Facebook groups; the control group through parenting forums and social media. A purposive and convenience sampling strategy was applied. All participants completed the PTSD Checklist for the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition DSM-5 (PCL-5) and a sociodemographic questionnaire. Data were analyzed using independent samples <i>t</i>-tests and two-way ANOVAs. No significant difference in overall PTSD severity emerged between groups. However, caregivers with higher education showed greater PTSD severity when caring for a child with a rare disease. Other socioeconomic factors were not significant. Tailored mental health support is recommended.

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Publication Details

Journal
Journal of Health Psychology
Published
2025-12-30
DOI
https://doi.org/10.1177/13591053251386169
Primary Topic
Genomics and Rare Diseases
Type
article
Field-Weighted Citation Impact
0.00
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article

Socioeconomic factors and post-traumatic stress disorder in Polish caregivers of children with rare genetic conditions

Joan Deus Yela, Albert Fornieles Deu, Weronika Wojtowicz
Journal of Health Psychology
Genomics and Rare Diseases
article

Socioeconomic factors and post-traumatic stress disorder in Polish caregivers of children with rare genetic conditions

Joan Deus Yela, Albert Fornieles Deu, Weronika Wojtowicz
article en

Abstract

This study examined post-traumatic stress disorder (PTSD) severity in caregivers of children with rare genetic conditions, focusing on the role of socioeconomic variables: education, family income, marital status, residence, and religious practice. One hundred parents were recruited: 50 of children with rare diseases and 50 of healthy children. The rare disease group was recruited via a patient association and Facebook groups; the control group through parenting forums and social media. A purposive and convenience sampling strategy was applied. All participants completed the PTSD Checklist for the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition DSM-5 (PCL-5) and a sociodemographic questionnaire. Data were analyzed using independent samples <i>t</i>-tests and two-way ANOVAs. No significant difference in overall PTSD severity emerged between groups. However, caregivers with higher education showed greater PTSD severity when caring for a child with a rare disease. Other socioeconomic factors were not significant. Tailored mental health support is recommended.

Journal of Health Psychology
Universitat Autònoma de Barcelona (ES)
No poverty
Openalex Percentile: Top 24%
Genomics and Rare Diseases
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