Health-related quality of life in adults with von Willebrand disease: results of the French real-life Willebrand study on health-related quality of life
The Willebrand study on HRQoL, using disease-specific PROs, reveals the real-life physical, emotional, and social burden of VWD, notably in severe forms and among women. By selecting key questions from these tools, clinicians can better assess these impacts across all patients and provide more comprehensive, long-term support for their well-being.
Authors
- Y. Repesse
- A. Veyradier
- G. Marin
- D. Desprez
- F. Genre-Volot
- S. Susen
- S. Bayart
- J. Goudemand
- S. von Mackensen
- M.H. André-Bonnet
- L. Ardillon
- M. Barthez-Toullec
- A. Borel-Derlon
- B. Pan-Petesch
- N. Itzhar-Baïkan
- H. Chambost
Institutions
- Universität Hamburg (DE)
- Haemophilia Foundation Australia (AU)
- University Medical Center Hamburg-Eppendorf (DE)
- Hôpital Lariboisière (FR)
- LFB (France) (FR)
- Laboratoire Vision Action Cognition (FR)
- Centre Français des Fonds et Fondations (FR)
Publication Details
- Journal
- Research and Practice in Thrombosis and Haemostasis
- Published
- 2025-12-30
- DOI
- https://doi.org/10.1016/j.rpth.2025.103324
- Primary Topic
- Platelet Disorders and Treatments
- Type
- article
- Field-Weighted Citation Impact
- 0.00