Scoping review: Facilitators, barriers, and cultural adaptations in the caregiver skills training program for children with developmental concerns

Autism interventions are predominantly developed in high-income countries, limiting access for families in low- and middle-income countries due to systemic, cultural, and logistical barriers. The Caregiver Skills Training program aims to address this disparity by equipping caregivers with practical skills. This scoping review examines the cultural adaptations, facilitators, and barriers to the implementation of Caregiver Skills Training, focusing on its accessibility, feasibility, and acceptability. A comprehensive search of ERIC, PsycINFO, PubMed, and Web of Science identified eligible studies that reported cultural or linguistic adaptations of Caregiver Skills Training. Forward searches and manual reference checks supplemented the review. Data were extracted using the Cultural Adaptation Checklist framework and analyzed for patterns in adaptation, training, barriers, and facilitators. Seventeen studies across Asia, Africa, Europe, and North America highlighted diverse adaptations in language, content, and delivery methods. Facilitators included community partnerships and task-shifting with non-specialists, while barriers involved logistical challenges, stigma, and resource constraints. Caregiver Skills Training's flexible, culturally responsive framework makes it a viable model for scaling autism interventions globally. Tailored adaptations and strong support systems for facilitators are essential to overcoming systemic challenges and ensuring equitable access in low- and middle-income countries.Lay abstract<b>How the Caregiver Skills Training Program Helps Families Worldwide</b>The Caregiver Skills Training program was designed to help families of children with autism and other developmental challenges in low-resource settings. Caregiver Skills Training empowers parents and caregivers by teaching them practical strategies to improve their child's communication, social interaction, and daily living skills. This program is unique because it does not require a formal diagnosis and is designed to be delivered by trained non-specialists, such as community health workers. A review of 17 studies from different countries examined how the Caregiver Skills Training program was adapted to fit the cultural and practical needs of families in each region. For example, materials were translated, simplified, and paired with visual aids to help parents with lower literacy levels. Non-specialist facilitators helped make the program more accessible, and online or hybrid delivery methods increased participation during the COVID-19 pandemic. However, challenges remain. Families often face barriers like limited transportation, stigma, and lack of Internet access, which can prevent them from fully participating in the program. Facilitators also need more training and support to maintain program quality. Despite these obstacles, Caregiver Skills Training shows promise as a global solution to bridge the gap in autism care, especially in underserved communities. This review highlights the importance of adapting programs like Caregiver Skills Training to meet the unique needs of families worldwide, ensuring that every child has the opportunity to thrive, regardless of where they live.

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Journal
Autism
Published
2025-12-27
DOI
https://doi.org/10.1177/13623613251406399
Primary Topic
Family and Disability Support Research
Type
article
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0.00
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article

Scoping review: Facilitators, barriers, and cultural adaptations in the caregiver skills training program for children with developmental concerns

Ana C. Ramírez, Pamela Dixon, Sarah Dababnah, María Cecilia Montenegro et al.
Autism
Family and Disability Support Research
article

Scoping review: Facilitators, barriers, and cultural adaptations in the caregiver skills training program for children with developmental concerns

Ana C. Ramírez, Pamela Dixon, Sarah Dababnah, María Cecilia Montenegro, Lucia Murillo Chacko, Victoria Villarreal, Cecilia Montiel-Nava
article en

Abstract

Autism interventions are predominantly developed in high-income countries, limiting access for families in low- and middle-income countries due to systemic, cultural, and logistical barriers. The Caregiver Skills Training program aims to address this disparity by equipping caregivers with practical skills. This scoping review examines the cultural adaptations, facilitators, and barriers to the implementation of Caregiver Skills Training, focusing on its accessibility, feasibility, and acceptability. A comprehensive search of ERIC, PsycINFO, PubMed, and Web of Science identified eligible studies that reported cultural or linguistic adaptations of Caregiver Skills Training. Forward searches and manual reference checks supplemented the review. Data were extracted using the Cultural Adaptation Checklist framework and analyzed for patterns in adaptation, training, barriers, and facilitators. Seventeen studies across Asia, Africa, Europe, and North America highlighted diverse adaptations in language, content, and delivery methods. Facilitators included community partnerships and task-shifting with non-specialists, while barriers involved logistical challenges, stigma, and resource constraints. Caregiver Skills Training's flexible, culturally responsive framework makes it a viable model for scaling autism interventions globally. Tailored adaptations and strong support systems for facilitators are essential to overcoming systemic challenges and ensuring equitable access in low- and middle-income countries.Lay abstract<b>How the Caregiver Skills Training Program Helps Families Worldwide</b>The Caregiver Skills Training program was designed to help families of children with autism and other developmental challenges in low-resource settings. Caregiver Skills Training empowers parents and caregivers by teaching them practical strategies to improve their child's communication, social interaction, and daily living skills. This program is unique because it does not require a formal diagnosis and is designed to be delivered by trained non-specialists, such as community health workers. A review of 17 studies from different countries examined how the Caregiver Skills Training program was adapted to fit the cultural and practical needs of families in each region. For example, materials were translated, simplified, and paired with visual aids to help parents with lower literacy levels. Non-specialist facilitators helped make the program more accessible, and online or hybrid delivery methods increased participation during the COVID-19 pandemic. However, challenges remain. Families often face barriers like limited transportation, stigma, and lack of Internet access, which can prevent them from fully participating in the program. Facilitators also need more training and support to maintain program quality. Despite these obstacles, Caregiver Skills Training shows promise as a global solution to bridge the gap in autism care, especially in underserved communities. This review highlights the importance of adapting programs like Caregiver Skills Training to meet the unique needs of families worldwide, ensuring that every child has the opportunity to thrive, regardless of where they live.

AutismVol. 30(3)
Autism Speaks (US), The University of Texas Rio Grande Valley (US), University of Maryland, College Park (US)
Partnerships for the goals
Openalex Percentile: Top 27%
Family and Disability Support Research
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