Barriers and facilitators to advance care planning for people with intellectual disabilities: a cross-sectional survey study of professional caregiver perspectives
ACP is rarely practiced in the care of people with ID in Austria. However, caregivers identified clear pathways to improve implementation, particularly through training, use of tailored communication methods, and systemic support within care institutions. Promoting inclusive ACP practices is essential to uphold the autonomy and health equity of people with ID, ensuring their voices are heard in decisions about their future and end-of-life care.
Authors
- Elisabeth L. Zeilinger (ORCID: https://orcid.org/0000-0002-0625-500X)
- Matthias Unseld (ORCID: https://orcid.org/0000-0002-1699-9846)
- Theresa Wagner (ORCID: https://orcid.org/0000-0002-8605-6296)
- Amelie Fuchs
- Tobias Fragner
- Tamina-Laetitia Vielgrader
- Eva Katharina Masel
- Igor Grabovac
- Lena Simeoni
Institutions
- University of Vienna (AT)
- Austrian Academy of Sciences (AT)
- Ludwig Boltzmann Institute for Age Research (AT)
- Krankenhaus der Elisabethinen (AT)
- Karl Landsteiner University of Health Sciences (AT)
- Medical University of Vienna (AT)
Publication Details
- Journal
- International Journal for Equity in Health
- Published
- 2025-12-27
- DOI
- https://doi.org/10.1186/s12939-025-02747-1
- Primary Topic
- Down syndrome and intellectual disability research
- Type
- article
- Field-Weighted Citation Impact
- 0.00