Increasing Access to Genetic Counselors With Disease‐Specific Expertise: Development of a Centralized Cystic Fibrosis Genetic Counseling Telehealth Model
A centralized CFgc-T service staffed by GCs with CF expertise could improve equitable access to CF-specific genetic counseling and was viewed favorably by key community members. Telehealth delivery may help resolve workforce shortages in specialties where few GCs have relevant expertise, offering a scalable, equitable model for care.
Authors
- Rachel Moyal‐Smith (ORCID: https://orcid.org/0000-0002-3911-7957)
- Karen S. Raraigh (ORCID: https://orcid.org/0000-0001-6730-6854)
- Molly A. McGinniss (ORCID: https://orcid.org/0000-0001-6764-8731)
- E. Langfelder-Schwind (ORCID: https://orcid.org/0000-0002-8119-7559)
- Richard B. Parad (ORCID: https://orcid.org/0000-0002-4326-0609)
- Melissa J. Basile (ORCID: https://orcid.org/0000-0003-1395-2927)
- Jenna Petersen
- Haylee Schwind
- Jennifer Polo
- Josua Talavera
Institutions
- Brigham and Women's Hospital (US)
- Feinstein Institute for Medical Research (US)
- Johns Hopkins University (US)
- American University (US)
- Lenox Hill Hospital (US)
Publication Details
- Journal
- Pediatric Pulmonology
- Published
- 2025-12-01
- DOI
- https://doi.org/10.1002/ppul.71416
- Primary Topic
- Cystic Fibrosis Research Advances
- Type
- article
- Field-Weighted Citation Impact
- 0.00